Taking people in United StatesNo phase

Observational Study of Pediatric Rheumatic Diseases: The CARRA Registry

Key facts

Where: Akron, Albany, Ann Arbor, Atlanta, Augusta, Aurora, Birmingham, Boston, Burlington, Chapel Hill, Charleston, Charlotte, Chicago, Cincinnati, Cleveland, Columbus, Dallas, Durham, Fargo, Gainesville, Grand Rapids, Hackensack, Hartford, Hershey, Houston, Indianapolis, Iowa City, Jackson, Kansas City, Lake Success, Los Angeles, Louisville, Madison, Miami, Minneapolis, Morristown, Nashville, New Brunswick, New Haven, New York, Norfolk, Orlando, Palo Alto, Philadelphia, Phoenix, Pittsburgh, Portland, Providence, Rochester, Salt Lake City, San Diego, San Francisco, Seattle, Springfield, St Louis, St. Petersburg, Washington D.C., Wauwatosa, West Orange, and Winston-Salem, United StatesSee the 75 sites

Where in United States

Akron Children's HospitalAkron, United StatesTaking people
Albany Medical CollegeAlbany, United StatesTaking people
University of MichiganAnn Arbor, United StatesTaking people
Emory Children's CenterAtlanta, United StatesTaking people
Georgia Regents University Medical CenterAugusta, United StatesTaking people
The Children's Hospital of ColoradoAurora, United StatesTaking people
University of Alabama at BirminghamBirmingham, United StatesTaking people
Boston Children's HospitalBoston, United StatesTaking people
Massachusetts General Hospital for ChildrenBoston, United StatesTaking people
Tufts Medical CenterBoston, United StatesTaking people
University of Vermont Medical CenterBurlington, United StatesTaking people
University of North Carolina at Chapel HillChapel Hill, United StatesTaking people
Medical University of South Carolina Children's HospitalCharleston, United StatesTaking people
Levine Children's Hospital / Carolinas Medical CenterCharlotte, United StatesTaking people
Ann & Robert H. Lurie Children's Hospital of ChicagoChicago, United StatesTaking people
University of Chicago Medical CenterChicago, United StatesTaking people
University of Illinois at ChicagoChicago, United StatesNo longer taking part
Cincinnati Children's Hospital Medical CenterCincinnati, United StatesTaking people
Cleveland Clinic FoundationCleveland, United StatesTaking people
MetroHealth Medical CenterCleveland, United StatesTaking people
UH Rainbox Babies and Children's HospitalCleveland, United StatesNo longer taking part
Nationwide Children's HospitalColumbus, United StatesTaking people
University of Texas Southwestern Medical Center - DallasDallas, United StatesTaking people
Duke Children's Hospital & Health CenterDurham, United StatesTaking people
Sanford HealthFargo, United StatesTaking people
University of Florida - Shand's Children's HospitalGainesville, United StatesTaking people
Helen DeVos Children's HospitalGrand Rapids, United StatesTaking people
West Michigan RheumatologyGrand Rapids, United StatesNo longer taking part
Hackensack University Medical CenterHackensack, United StatesTaking people
Connecticut Children's Medical CenterHartford, United StatesTaking people
Penn State Children's HospitalHershey, United StatesTaking people
Baylor College of Medicine Pediatric Immunology Allergy RheumatologyHouston, United StatesTaking people
Indiana University School of MedicineIndianapolis, United StatesTaking people
The University of Iowa Hospitals and Clinics (University of Iowa Children's Hospital)Iowa City, United StatesTaking people
University of Mississippi Medical CenterJackson, United StatesTaking people
Children's Mercy HospitalKansas City, United StatesTaking people
University of Kansas Medical CenterKansas City, United StatesNo longer taking part
Cohen Children's Medical Center of New YorkLake Success, United StatesTaking people
Children's Hospital of Los AngelesLos Angeles, United StatesNot yet recruiting
Mattel Children's Hospital at University of California Los AngelesLos Angeles, United StatesTaking people
University of Louisville Schoole of MedicineLouisville, United StatesTaking people
University of Wisconsin-American Family Children's HospitalMadison, United StatesTaking people
Nicklaus Children's HospitalMiami, United StatesNo longer taking part
University of MinnesotaMinneapolis, United StatesTaking people
Goryeb Children's HospitalMorristown, United StatesTaking people
Monroe Carrell Jr. Children's Hospital at VanderbiltNashville, United StatesTaking people
Robert Wood Johnson Medical SchoolNew Brunswick, United StatesTaking people
Yale UniversityNew Haven, United StatesNo longer taking part
Children's Hospital at MontefioreNew York, United StatesTaking people
Columbia University Medical CenterNew York, United StatesTaking people
Hospital for Special SurgeryNew York, United StatesTaking people
New York University Langone Medical CenterNew York, United StatesNo longer taking part
Children's Hospital of The King's DaughtersNorfolk, United StatesTaking people
Nemours Children's HospitalOrlando, United StatesTaking people
Stanford University Medical CenterPalo Alto, United StatesTaking people
Children's Hospital of PhiladelphiaPhiladelphia, United StatesTaking people
Saint Christopher's Hospital for ChildrenPhiladelphia, United StatesTaking people
Phoenix Children s HospitalPhoenix, United StatesTaking people
Children's Hospital of Pittsburgh UPMCPittsburgh, United StatesTaking people
Randall Children's Hospital at Legacy EmanuelPortland, United StatesTaking people
Hasbro Children's HospitalProvidence, United StatesTaking people
Mayo ClinicRochester, United StatesTaking people
University of RochesterRochester, United StatesTaking people
University of Utah Hospitals and Clinics (Primary Children's Hospital)Salt Lake City, United StatesTaking people
Rady Children's Hospital - San DiegoSan Diego, United StatesTaking people
University of California at San Francisco Medical CenterSan Francisco, United StatesTaking people
Seattle Children's HospitalSeattle, United StatesTaking people
Bay State Medical CenterSpringfield, United StatesNo longer taking part
Saint Louis Children's HospitalSt Louis, United StatesTaking people
Saint Louis University School of MedicineSt Louis, United StatesNo longer taking part
Johns Hopkins All Children's HospitalSt. Petersburg, United StatesTaking people
Childrens National Medical CenterWashington D.C., United StatesTaking people
Children's Hospital Of WisconsinWauwatosa, United StatesTaking people
The Pediatric Specialty Center at Saint BarnabasWest Orange, United StatesTaking people
Wake Forest Baptist Brenner Children's HospitalWinston-Salem, United StatesTaking people

Questions to ask the study team

How often do I need to come in, and for how long each time?
Are travel costs paid?
Can I keep my own doctor?
What happens if I want to stop?

Print a page for my doctor

Trial details

Who runs it: Duke University
Trial code: NCT02418442
Record updated: 21 October 2026
Original description: Continuation of the CARRA Registry as described in the protocol will support data collection on patients with pediatric-onset rheumatic diseases. The CARRA Registry will form the basis for future CARRA studies. In particular, this observational registry will be used to answer pressing questions about therapeutics used to treat pediatric rheumatic diseases, including safety questions.Read full original descriptionShow less
Continuation of the CARRA Registry as described in the protocol will support data collection on patients with pediatric-onset rheumatic diseases. The CARRA Registry will form the basis for future CARRA studies. In particular, this observational registry will be used to answer pressing questions about therapeutics used to treat pediatric rheumatic diseases, including safety questions.
Inclusion: Onset of rheumatic disease prior to age 16 years for JIA and onset prior to age 19 years for all other rheumatic diseases (see appendix A); Subject (and/or parent/legal guardian when required) is able to provide written informed consent and willing to comply with study procedures; Subject and/or parent/legal guardian is willing to be contacted in the future by study staff.
Exclusion: Greater than 21 years of age at the time of enrollment.
ClinicalTrials.gov NCT02418442