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Registry following women with vasculitis who become pregnant

Collects online surveys on pregnancy experiences and outcomes in women with vasculitis.

Plain-language title generated from the registry record
Registry title: Vasculitis Pregnancy Registry

Key facts

Where
Tampa, United StatesSee the site

Could this be for you?

Answer for yourself. This is not a decision: only the study team can say whether you can take part.

  • Are you between 18 and 50 years old?

Source: NCT02593565, who can take part

Where in United States

  • University of South Florida Data Management and Coordinating CenterTampa, United StatesTaking people

Questions to ask the study team

  1. How often do I need to come in, and for how long each time?
  2. Are travel costs paid?
  3. Can I keep my own doctor?
  4. What happens if I want to stop?
Print a page for my doctor

Trial details

Who runs it
University of Pennsylvania
Trial code
NCT02593565
Record updated
23 January 2026
Original description
The purpose of this study is to learn about the experience of women with vasculitis who become pregnant. In particular, the study will consist of several online surveys to assessRead full original descriptionShow less

The Vasculitis Pregnancy Registry (V-PREG)

The purpose of this study is to learn about the experience of women with vasculitis who become pregnant. In particular, the study will consist of several online surveys to assess

1. each woman's vasculitis severity and pregnancy-related experiences, and 2. pregnancy outcomes.

Inclusion: Women 18 years of age or older with one of the following diseases may take part in the study:; Behçet's disease; Central nervous system (CNS) vasculitis; Cryoglobulinemic vasculitis (Cryoglobulinemia); Eosinophilic granulomatosis with polyangiitis (also called Churg-Strauss Syndrome); Giant Cell (Temporal) Arteritis (GCA); Granulomatosis with polyangiitis (also called Wegener's); IgA vasculitis (Henoch-Schoenlein purpura); Microscopic polyangiitis (MPA); Polyarteritis nodosa (PAN); Takayasu's arteritis (TAK); Urticarial vasculitis; Other/Suspected Diagnosis; Women must be pregnant (self-report) at the time of enrollment into the registry.

Exclusion: Non-English speaking, with the exception of people who speak Spanish, Portuguese, Italian, or Turkish; Unable to provide consent.

ClinicalTrials.gov NCT02593565