Collects health information from people with blood cell disorders called myeloproliferative neoplasms
Records clinical and molecular information from people with myeloproliferative neoplasms over time.
Plain-language title generated from the registry record
Registry title: Myeloproliferative Neoplasms (MPNs) Patient Registry
Key facts
- Where
- Toronto, CanadaSee the site
Where in Canada
- Princess Margaret Cancer CentreToronto, CanadaTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- University Health Network, Toronto
- Trial code
- NCT02760238
- Record updated
- 27 August 2024
- Original description
The mandate of this MPN registry is to collect clinical information, including molecular results, from consenting patients with a variety of MPNs at different time points during the course of their disease.Read full original descriptionShow less
Clinical and Molecular Epidemiology of Myeloproliferative Neoplasms (MPNs)
The mandate of this MPN registry is to collect clinical information, including molecular results, from consenting patients with a variety of MPNs at different time points during the course of their disease.
Inclusion: Diagnosis of one of the following myeloproliferative neoplasms (MPNs):; Atypical CML (aCML); Chronic eosinophilic leukemia-not otherwise specified (CEL, NOS),; Chronic myelomonocytic leukemia (CMML); Chronic neutrophilic leukemia (CNL),; Essential thrombocythemia (ET),; Juvenile myelomonocytic leukemia (JMML),; Mastocytosis, MPN unclassifiable; MPN/MDS unclassifiable,; Primary myelofibrosis (PMF),; Post-essential thrombocythemia myelofibrosis (post-ET MF),; Post-polycythemia vera MF (post-PV MF); Refractory anemia with ringed sideroblasts associated with marked thrombocytosis (RARS-T).
Exclusion: None.