Registry following adults with COPD and related lung conditions over time
Collects health information from adults with COPD or at risk to speed research.
Plain-language title generated from the registry record
Registry title: COPD Patient-Powered Research Network
Key facts
- Where
- Washington D.C., United StatesSee the site
Where in United States
- COPD FoundationWashington D.C., United StatesTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- COPD Foundation
- Trial code
- NCT02803242
- Record updated
- 10 March 2022
- Original description
The COPD Patient-Powered Research Network (COPD PPRN) is a patient research registry with the goal of enrolling 75,000 or more COPD patients and those at risk who are willing to share their heath information over several years and participate in research. The COPD PPRN has built an online platform to allow volunteers to enroll electronically, complete surveys, be contacted about studies they qualify for and become connected to COPD resources. The goal of the registry is to speed research to find better treatments for COPD and ultimately a cure.Read full original descriptionShow less
COPD Patient-Powered Research Network
The COPD Patient-Powered Research Network (COPD PPRN) is a patient research registry with the goal of enrolling 75,000 or more COPD patients and those at risk who are willing to share their heath information over several years and participate in research. The COPD PPRN has built an online platform to allow volunteers to enroll electronically, complete surveys, be contacted about studies they qualify for and become connected to COPD resources. The goal of the registry is to speed research to find better treatments for COPD and ultimately a cure.
Inclusion: 18 years or older that says yes to one of the following:; COPD diagnosis; Current or former smoker; Family history of respiratory disease; Symptomatic of respiratory disease.
Exclusion: Non-English speaking.