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Taking people in ItalyNo phase

Collects data on adults newly diagnosed with myelodysplastic syndrome in Italy

Collects information on adults newly diagnosed with myelodysplastic syndrome, a blood disorder.

Plain-language title generated from the registry record
Registry title: Italian Network MDS Registry

Key facts

Where
Alessandria, Ancona, Asti, Bari, Bologna, Cagliari, Candiolo, Chieri, Florence, Genova, Orbassano, Padova, Parma, Perugia, Pesaro, Rionero in Vulture, Torino, and Tricase, ItalySee the 20 sites

Could this be for you?

Answer for yourself. This is not a decision: only the study team can say whether you can take part.

  • Are you between 18 and 106 years old?

Source: NCT02808858, who can take part

Where in Italy

  • Ematologia, AO SS. Antonio e BiagioAlessandria, ItalyTaking people
  • Clinica di Ematologia, AOU Ospedale di TorretteAncona, ItalyTaking people
  • Ospedale Cardinal MassaiaAsti, ItalyTaking people
  • Ematologia AOU Policlinico di BariBari, ItalyTaking people
  • Istituto di Ematologia e Oncologia Medica, Policlinico S.OrsolaBologna, ItalyTaking people
  • Ematologia- Ospedale BusincoCagliari, ItalyTaking people
  • FPO - IRCCS di CandioloCandiolo, ItalyTaking people
  • Ospedale MaggioreChieri, ItalyTaking people
  • Cattedra di Ematologia Policlino CareggiFlorence, ItalyTaking people
  • Dipartimento Emato-Oncologia AOU San Martino GenovaGenova, ItalyTaking people
  • U.O. Clinica Medicina Interna, IRCCS San Martino ISTGenova, ItalyTaking people
  • Medicina interna II Divisione di Ematologia Ospedale S.Luigi GonzagaOrbassano, ItalyTaking people
  • Azienda Ospedaliera di PadovaPadova, ItalyTaking people
  • Struttura Cattedra di Ematologia e CTMO, AOU di ParmaParma, ItalyTaking people
  • Azienda Ospedaliera PerugiaPerugia, ItalyTaking people
  • AOU San SalvatorePesaro, ItalyTaking people
  • Ematologia e Centro Trapianti, Centro di Riferimento Oncologico della BasilicataRionero in Vulture, ItalyTaking people
  • Ospedale San Giovanbni Battista-MolinetteTorino, ItalyTaking people
  • S.C.D.U. Ematologia e Terapie cellulari, Ospedale MaurizianoTorino, ItalyTaking people
  • Divisione di Ematologia-Ospedale Cardinale PanicoTricase, ItalyTaking people

Questions to ask the study team

  1. How often do I need to come in, and for how long each time?
  2. Are travel costs paid?
  3. Can I keep my own doctor?
  4. What happens if I want to stop?
Print a page for my doctor

Trial details

Who runs it
Fondazione Italiana Sindromi Mielodisplastiche-ETS
Trial code
NCT02808858
Record updated
4 September 2026
Original description
Epidemiological data collection of adult patients affected by myelodysplastic syndrome (MDS) newly diagnosed.Read full original descriptionShow less

Rete Italiana Dei Registri Regionali Delle Sindromi Mielodisplastiche (MDS)

Epidemiological data collection of adult patients affected by myelodysplastic syndrome (MDS) newly diagnosed.

Inclusion: New diagnosis of MDS.

Exclusion: Patient who refuse the signature of informed consent.

ClinicalTrials.gov NCT02808858