Taking people in United StatesNo phase

National Collaborative to Improve Care of Children With Complex Congenital Heart Disease

Key facts

Where: Akron, Ann Arbor, Atlanta, Aurora, Baltimore, Birmingham, Boston, Charleston, Charlotte, Charlottesville, Chicago, Cincinnati, Cleveland, Columbus, Dallas, Durham, Falls Church, Fort Worth, Gainesville, Harrisburg, Houston, Indianapolis, Iowa City, Jackson, Jefferson, Kansas City, Little Rock, Los Angeles, Louisville, Madison, Memphis, Miami, Milwaukee, Minneapolis, Nashville, New Hyde Park, New Orleans, New York, Oak Lawn, Omaha, Orlando, Palo Alto, Philadelphia, Phoenix, Pittsburgh, Portland, Rochester, Sacramento, Salt Lake City, San Diego, Seattle, St Louis, St. Petersburg, The Bronx, Washington D.C., and Wilmington, United StatesSee the 61 sites

Where in United States

Akron Children's HospitalAkron, United StatesContact: Mark TimbersNo longer taking part
University of Michigan, C.S. Mott Children's HospitalAnn Arbor, United StatesContact: Karen UzarkTaking people
Children's Healthcare of AtlantaAtlanta, United StatesContact: Sherry SmithTaking people
Children's Hospital ColoradoAurora, United StatesContact: Alison Artico DumondTaking people
University of Maryland Children's HospitalBaltimore, United StatesContact: Beth SherfyTaking people
Children's of AlabamaBirmingham, United StatesContact: Mark TimbersNo longer taking part
Boston Children's HospitalBoston, United StatesContact: David BrownTaking people
Medical University of South CarolinaCharleston, United StatesContact: Frances WoodwardTaking people
Levine Children's Hospital-Sanger Heart and Vascular InstituteCharlotte, United StatesContact: Kari CrawfordTaking people
UVA Children's HospitalCharlottesville, United StatesContact: Leslie PeregoyTaking people
Ann and Robert H. Lurie Children's Hospital of ChicagoChicago, United StatesContact: Kathleen Van't HoffTaking people
Cincinnati Children's HospitalCincinnati, United StatesContact: Mark TimbersTaking people
Cleveland Clinic Children's HospitalCleveland, United StatesContact: Francine Erenberg, MDTaking people
University Hospitals Case Medical Center - Rainbow Babies & Children's Hospital, Pediatric Heart CenterCleveland, United StatesContact: Sarah PlummerTaking people
Nationwide Children's HospitalColumbus, United StatesContact: Holly Miller-TateTaking people
Children's Medical Center of DallasDallas, United StatesContact: Kimberly MooreTaking people
Duke University Medical CenterDurham, United StatesContact: Michael Camitta, MDTaking people
Inova Children's HospitalFalls Church, United StatesContact: Mechelle FleischerTaking people
Cook Childrens Medical CenterFort Worth, United StatesContact: Lisa Roten, MDTaking people
University of Florida/UF HealthGainesville, United StatesContact: Dalia Lopez-ColonTaking people
PennState Hershey Medical Center--PennState Health Children's HospitalHarrisburg, United StatesContact: Julie JonesNot yet recruiting
Texas Children's HospitalHouston, United StatesContact: Rocky TsangTaking people
Riley Hospital for Children at IU HealthIndianapolis, United StatesContact: Dana HartmanTaking people
University of Iowa Children's HospitalIowa City, United StatesContact: Trudy PierickTaking people
Batson Children's Hospital-University of Mississippi Medical CenterJackson, United StatesContact: Stephanie GhalebTaking people
Ochsner Hospital For ChildrenJefferson, United StatesContact: Ivory CrittendonTaking people
Children's Mercy Hospitals and ClinicsKansas City, United StatesContact: Lori EricksonTaking people
Arkansas Children's HospitalLittle Rock, United StatesContact: Cindy CarpenterTaking people
Children's Hospital Los AngelesLos Angeles, United StatesContact: Jay PruetzTaking people
UCLA Mattel Children's HospitalLos Angeles, United StatesContact: Nancy HalnonTaking people
Norton Children's HospitalLouisville, United StatesContact: Ashley RhinehartTaking people
University of Wisconsin, American Family Children'sMadison, United StatesContact: Sharda Srinivasan, MDTaking people
Le Bonheur Children's HospitalMemphis, United StatesContact: Gina GuascoTaking people
Nicklaus Children's HospitalMiami, United StatesContact: Madalsa PatelTaking people
Children's Hospital of WisconsinMilwaukee, United StatesContact: Nancy RuddTaking people
Children's Hospital and Clinics of MinnesotaMinneapolis, United StatesContact: Jocelyn BerbeeTaking people
University of Minnesota/Masonic Children's HospitalMinneapolis, United StatesContact: Kavisha Shah, MDTaking people
Monroe Carell Jr. Children's Hospital at VanderbiltNashville, United StatesContact: David Parra, MDTaking people
Cohen Children's Medical Center/Northwell HealthNew Hyde Park, United StatesContact: Elizabeth Vinas, RN, MDTaking people
Children's Hospital New OrleansNew Orleans, United StatesContact: Thomas Kimball, MDTaking people
Columbia University- NY PresbyterianNew York, United StatesContact: Anne Ferris, MDTaking people
NYU Medical CenterNew York, United StatesContact: Ralph MoscaTaking people
Advocate Children's HospitalOak Lawn, United StatesContact: Bonnie HughesTaking people
Children's Hospital and Medical Center OmahaOmaha, United StatesContact: Jenny StrawnTaking people
Arnold Palmer Children's HospitalOrlando, United StatesContact: Karen IaconoTaking people
Lucile Packard Children's Hospital - StanfordPalo Alto, United StatesContact: Kelly KirbyTaking people
Children's Hospital of PhiladelphiaPhiladelphia, United StatesContact: Alyson StaggTaking people
Phoenix Children s HospitalPhoenix, United StatesContact: Joseph Graziano, MDTaking people
Children's Hospital of Pittsburgh of UPMCPittsburgh, United StatesContact: Cynthia CardwellTaking people
Doernbecher Children's HospitalPortland, United StatesContact: Christina RonaiTaking people
University of Rochester Medical CenterRochester, United StatesContact: Cecilia MeagherTaking people
Sutter Medical Center SacramentoSacramento, United StatesContact: Michelle AgnewTaking people
UC Davis Children's HospitalSacramento, United StatesContact: Mary ZanobiniTaking people
Primary Children's HospitalSalt Lake City, United StatesContact: Linda LambertTaking people
Rady Children's HospitalSan Diego, United StatesContact: Jessica Haley, MDTaking people
Seattle Children's HospitalSeattle, United StatesContact: Titus ChanTaking people
St. Louis Children's HospitalSt Louis, United StatesContact: Mayte Figueroa, MDTaking people
Johns Hopkins All Children's HospitalSt. Petersburg, United StatesContact: Courtney HoganTaking people
The Children's Hospital of MontefioreThe Bronx, United StatesContact: Chelsie CorneliusTaking people
Children's National Medical CenterWashington D.C., United StatesContact: Sarah Clauss, MDTaking people
Nemours Cardiac Center, A.I DuPont Hospital for ChildrenWilmington, United StatesContact: Carol ProsperoTaking people

Questions to ask the study team

How often do I need to come in, and for how long each time?
Are travel costs paid?
Can I keep my own doctor?
What happens if I want to stop?

Contact the study team: see the registry record → Contacts and Locations

Print a page for my doctor

Trial details

Who runs it: Children's Hospital Medical Center, Cincinnati
Trial code: NCT02852031
Record updated: 19 June 2025
Original description: The purpose of this initiative is to improve care and outcomes for infants with HLHS by expanding the NPC-QIC national registry to gather clinical care process, outcome, and developmental data on infants with HLHS between diagnosis and 12 months of age, by improving the use of standards into everyday practice across pediatric cardiology centers, and by engaging parents as partners in the process.Read full original descriptionShow less
National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC) - A Collaborative Initiative to Improve Care of Children With Complex Congenital Heart Disease
The purpose of this initiative is to improve care and outcomes for infants with HLHS by expanding the NPC-QIC national registry to gather clinical care process, outcome, and developmental data on infants with HLHS between diagnosis and 12 months of age, by improving the use of standards into everyday practice across pediatric cardiology centers, and by engaging parents as partners in the process.
Inclusion: Fetuses or newborns diagnosed with HLHS or other univentricular condition; Intended to undergo Norwood procedure.
Exclusion: None.
ClinicalTrials.gov NCT02852031