Registry collecting anonymous data on people with hemophilia and von Willebrand disease
Collects anonymous data on people with hemophilia or von Willebrand disease.
Plain-language title generated from the registry record
Registry title: World Bleeding Disorders Registry
Key facts
- Where
- Montreal, CanadaSee the site
AI summary: who the study is looking for
From the trial's eligibility criteria. Machine-read from the registry text on this page, so it can be wrong. The registry text below and the trial team decide who can take part.
The registry is looking for patients of taking part hemophilia treatment centres who have hemophilia A, hemophilia B or von Willebrand disease.
- Sex
- People of all sexes can join.
- Disease stage
- Hemophilia A, hemophilia B or von Willebrand disease. No stage or severity is named.
Read by machine on 12 November 2026.
Where in Canada
- World Federation of HemophiliaMontreal, CanadaContact: Donna Coffin, M.Sc.Taking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Contact the study team: see the registry record → Contacts and Locations
Print a page for my doctorTrial details
- Who runs it
- World Federation of Hemophilia
- Trial code
- NCT03327779
- Record updated
- 14 August 2023
- Original description
The WBDR is an international observational disease registry of patients with hemophilia. It will provide a platform for a network of hemophilia treatment centres (HTCs) around the world to collect uniform and standardized patient data and guide clinical practice. With informed consent from the patient, the WBDR stores anonymous data about the person's disease, such as hemophilia type and severity, symptoms, and treatment.Read full original descriptionShow less
World Bleeding Disorders Registry
The WBDR is an international observational disease registry of patients with hemophilia. It will provide a platform for a network of hemophilia treatment centres (HTCs) around the world to collect uniform and standardized patient data and guide clinical practice. With informed consent from the patient, the WBDR stores anonymous data about the person's disease, such as hemophilia type and severity, symptoms, and treatment.
Inclusion: Patients of participating Hemophilia Treatment Centres with Hemophilia A or B, or von Willebrand Disease.
Exclusion: none.