Taking people in United StatesNo phase
Clinical Procedures to Support Research in ALS
Key facts
- Where
- Durham, Irvine, Kansas City, Miami, Minneapolis, New York, Palo Alto, Portland, San Antonio, San Francisco, and Winston-Salem, United StatesSee the 11 sites
Where in United States
- Duke UniversityDurham, United StatesTaking people
- University of California, IrvineIrvine, United StatesTaking people
- University of Kansas Medical CenterKansas City, United StatesTaking people
- University of MiamiMiami, United StatesTaking people
- Hennepin County Medical CenterMinneapolis, United StatesTaking people
- Columbia UniversityNew York, United StatesNo longer taking part
- Stanford UniversityPalo Alto, United StatesTaking people
- Providence Health & ServicesPortland, United StatesTaking people
- University of Texas - San Antonio - Health Science CenterSan Antonio, United StatesTaking people
- California Pacific Medical CenterSan Francisco, United StatesTaking people
- Wake Forest UniversityWinston-Salem, United StatesTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- University of Miami
- Trial code
- NCT03489278
- Record updated
- 15 June 2026
- Original description
The purpose of the Clinical Procedures To Support Research (CAPTURE) study is to utilize information collected in the medical record to learn more about a disease called amyotrophic lateral sclerosis (ALS) and related disorders.Read full original descriptionShow less
Clinical Procedures to Support Research in ALS (CAPTURE-ALS)
The purpose of the Clinical Procedures To Support Research (CAPTURE) study is to utilize information collected in the medical record to learn more about a disease called amyotrophic lateral sclerosis (ALS) and related disorders.
Inclusion: Diagnosis of ALS or a related disorder (e.g. primary lateral sclerosis, progressive muscular atrophy); Receiving care at a clinical center that uses Epic as its EHR; Able and willing to provide informed consent (or informed consent obtainable from a designated proxy).
Exclusion: Inability to understand English and/or Spanish.