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Maps and diagnoses heart muscle diseases to guide earlier, targeted treatment

Studies adults with several types of cardiomyopathy, a heart muscle disease, to diagnose them.

Plain-language title generated from the registry record
Registry title: Sahlgrenska Cardiomyopathy Project

Key facts

Where
Gothenburg, SwedenSee the site

Could this be for you?

Answer for yourself. This is not a decision: only the study team can say whether you can take part.

  • Are you between 18 and 99 years old?

Source: NCT03527342, who can take part

Where in Sweden

  • Göteborg University, Sahlgrenska UniversitetssjukhusetGothenburg, SwedenNo longer taking part

Questions to ask the study team

  1. How often do I need to come in, and for how long each time?
  2. Are travel costs paid?
  3. Can I keep my own doctor?
  4. What happens if I want to stop?
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Trial details

Who runs it
Göteborg University
Trial code
NCT03527342
Record updated
6 November 2018
Original description
This is a joint project by Sahlgrenska University Hospital: Sahlgrenska, Östra and Mölndal.Read full original descriptionShow less

Sahlgrenska University Hospital Cardiomyopathy Project: Mapping and Diagnosis of Cardiomyopathies to Enable Early and Specific Treatment

This is a joint project by Sahlgrenska University Hospital: Sahlgrenska, Östra and Mölndal.

Our objective is to diagnose and map patients with well phenotyped cardiomyopathies (CMP) including in depth clinical and molecular phenotyping to enable earlier and specific treatment. The project will serve as:

1. resource for diagnostic and therapeutic trials 2. common biomaterial bank 3. resource for detailed molecular analyses on patients' biomaterials and patient specific symptoms and examination results

Inclusion: Patients with primary cardiomyopathies including hereditary and inflammatory dilated cardiomyopathy, hypertrophic cardiomyopathy, restrictive cardiomyopathy, left ventricular non-compaction cardiomyopathy, arrhythmogenic right ventricular cardiomyopathy, myocarditis, giant cell myocarditis, sarcoidosis and amyloidosis engaging the heart.

Exclusion: Patient with other preexisting cardiac diseases such as significant valvular, ischemic or pericardial disease before they receive a cardiomyopathy diagnose; patients < 18 years.

ClinicalTrials.gov NCT03527342