Registry following adults with plasma cell disorders, including multiple myeloma

AI summary

From the trial's eligibility criteria. Machine-read from the registry text on this page, so it can be wrong. The registry text below and the trial team decide who can take part.

The trial is looking for adults with a plasma cell disorder, such as multiple myeloma, who are treated at UNC Cancer Hospitals or partner sites and will complete an assessment.

Age

18 years or older

Sex

All sexes can join

Disease stage

A documented plasma cell disorder: a monoclonal protein and/or a monoclonal plasma cell population in the blood or marrow. Examples are smoldering myeloma, active multiple myeloma, plasma cell leukemia, amyloidosis and POEMS syndrome.

Main reasons for not taking part

• Physical or mental health problems that the treating doctor feels would prevent taking part successfully
• Cannot read and speak English
• Does not agree to complete the assessment at the start and at follow-up visits

The registry criteria, word for word

What the trial wants to find out

The primary purpose of this protocol is to create a registry of patients with plasma cell disorders (PCDs), including for example the cancer multiple myeloma (MM), who complete the assessment, previously known as a "geriatric assessment," as is outlined in this protocol. Secondary objectives include measuring the response rate to participation of patients in this study, assessing patient satisfaction with the questionnaire, and gathering information that would lend support for future research into these types of assessments in patients with PCDs. Additionally the study offers an optional blood draw to look at a genetic marker of aging called p16INK4a (IRB 15-1899, IRB 15-0244).