Registry following people in Canada living with type 1 diabetes
Collects questionnaires and health tests from people with type 1 diabetes about low blood sugar.
Plain-language title generated from the registry record
Registry title: Registry of Patients Living With Type 1 Diabetes
Key facts
- Where
- Edmonton, Montreal, Québec, and Sherbrooke, CanadaSee the 7 sites
Where in Canada
- Alberta Diabetes InstituteEdmonton, CanadaTaking people
- Centre Hospitalier de l'Université de MontréalMontreal, CanadaTaking people
- Centre Hospitalier Universitaire Sainte-JustineMontreal, CanadaTaking people
- Institut de Recherches Cliniques de MontrealMontreal, CanadaTaking people
- McGill University Health CentreMontreal, CanadaTaking people
- Centre hospitalier universitaire de Québec -Université LavalQuébec, CanadaTaking people
- Centre Hospitalier Universitaire de SherbrookeSherbrooke, CanadaTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Institut de Recherches Cliniques de Montreal
- Trial code
- NCT03720197
- Record updated
- 25 February 2025
- Original description
A registry of individuals with type 1 diabetes open to all patients with type 1 diabetes living in Canada will be established. The objective of this registry will be to measure the frequency and the severity of episodes of hypoglycemia. Participants will be invited to answer questionnaires about the frequency of their hypoglycemic episodes, their fear about hypoglycemia, their symptoms of hypoglycemia, the factors in cause (insulin therapy, nutrition, exercise, etc.), etc.Read full original descriptionShow less
Registry of Individuals With Type 1 Diabetes Living in Canada: The BETTER Registry
A registry of individuals with type 1 diabetes open to all patients with type 1 diabetes living in Canada will be established. The objective of this registry will be to measure the frequency and the severity of episodes of hypoglycemia. Participants will be invited to answer questionnaires about the frequency of their hypoglycemic episodes, their fear about hypoglycemia, their symptoms of hypoglycemia, the factors in cause (insulin therapy, nutrition, exercise, etc.), etc.
Participation to the registry is divided in 3 phases. The first phase is mandatory for all participants. Phases 2 and 3 are optional.
Inclusion: Diagnosis of type 1 diabetes; Living in Canada.
Exclusion: Type 2 diabetes; Gestational diabetes.