Studying multiple myeloma across racial and ethnic groups in California

AI summary

From the trial's eligibility criteria. Machine-read from the registry text on this page, so it can be wrong. The registry text below and the trial team decide who can take part.

The trial is looking for adults in California who were diagnosed with multiple myeloma in the past 5 years and are still alive. They must be African American, Latino, Asian American/Native Hawaiian/Pacific Islander, or non-Hispanic White.

Age

At least 21 years old at the time of diagnosis.

Sex

All sexes can join.

Disease stage

A first primary multiple myeloma confirmed by pathology, diagnosed within the previous 5 years.

Main reasons for not taking part

• Never diagnosed with multiple myeloma
• Under the age of 21
• Pregnant
• Prisoner
• Diagnosed outside the 48 California counties of the study

The registry criteria, word for word

What the trial wants to find out

The objectives of the proposed study are to develop and evaluate protocols for ethnic/racial minority-specific research using cancer registry data. In conjunction with the Cancer Registry of Greater California (CRGC), the investigators have developed procedures to identify, recruit, and survey ethnic/racial minority patients with MM. To pilot the study, the investigators aim initially to test the feasibility of this protocol by contacting 400 eligible patients (100 African Americans, 100 Latinos, 100 Asian American/Native Hawaiian/Pacific Islander-AANHPI and 100 non-Hispanic Whites as a comparison group) to conduct a pilot survey through which will ascertain etiological and survival-related factors for MM. Ultimately, the investigators hope the findings from this pilot will yield insight into the best practices for recruiting minorities with MM and serve as the basis for larger population-based studies of MM etiology and survival.