Global registry collecting data on pulmonary hypertension patients worldwide
Pools anonymized data from local registries to study pulmonary hypertension across regions.
Plain-language title generated from the registry record
Registry title: PVRI GoDeep Global Deep Phenotyping Meta-Registry for Pulmonary Hypertension
Key facts
- Where
- Giessen, GermanySee the site
Where in Germany
- University Giessen PH CenterGiessen, GermanyTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- University of Giessen
- Trial code
- NCT05329714
- Record updated
- 4 April 2025
- Original description
PVRI-GoDeep is a PH Meta-Registry, run under the umbrella of the Pulmonary Vascular Research Institute (PVRI). It merges anonymized PH patient related data from various local registries around the world run under the responsibility of PVRI members. It will be operated under the auspices of the University of Giessen/Giessen PH center. Combining deep phenotyping with worldwide outreach, PVRI-GoDeep aims to offer insights into specific geographical and ethnical profiles of PH, to deepen the epidemiological, clinical and molecular understanding of this disease and to promote strategies for improved individualized treatment of PH patients.Read full original descriptionShow less
PVRI Global Deep Phenotyping Meta-Registry for Pulmonary Hypertension
PVRI-GoDeep is a PH Meta-Registry, run under the umbrella of the Pulmonary Vascular Research Institute (PVRI). It merges anonymized PH patient related data from various local registries around the world run under the responsibility of PVRI members. It will be operated under the auspices of the University of Giessen/Giessen PH center. Combining deep phenotyping with worldwide outreach, PVRI-GoDeep aims to offer insights into specific geographical and ethnical profiles of PH, to deepen the epidemiological, clinical and molecular understanding of this disease and to promote strategies for improved individualized treatment of PH patients.
Inclusion: Clinical Diagnosis of Pulmonary Hypertension.
Exclusion: none.