Tests a blood cancer charity's support programs in adults with blood cancer
Tests how support services affect care access and quality of life in adults.
Plain-language title generated from the registry record
Registry title: Leukemia and Lymphoma Society (LLS) Services Impact on Outcomes and Care
Key facts
- Where
- Chicago, Miami, and San Antonio, United StatesSee the 3 sites
Where in United States
- University of Chicago Comprehensive Cancer CenterChicago, United StatesNot yet recruiting
- Sylvester Comprehensive Cancer Center*Miami, United StatesTaking people
- Mays Cancer Center at UT Health San AntonioSan Antonio, United StatesNot yet recruiting
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- University of Miami
- Trial code
- NCT05745285
- Record updated
- 16 October 2026
- Original description
The purpose of this study is to learn about the impact that the services and programs provided by Blood Cancer United (formerly, The Leukemia and Lymphoma Society) have among patients with blood cancer, such as access to care, quality of life, and financial burden.Read full original descriptionShow less
The Impact of a Non-Profit Cancer Advocacy Organization on Patient Reported Outcomes and Access to Care: A Multisite, Longitudinal Trial
The purpose of this study is to learn about the impact that the services and programs provided by Blood Cancer United (formerly, The Leukemia and Lymphoma Society) have among patients with blood cancer, such as access to care, quality of life, and financial burden.
Inclusion: Be diagnosed with, or have a recurrence of leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDS), or myeloproliferative neoplasms (MPN); Have received, be receiving, or be planning to receive primary or relapse treatment for leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDS), or myeloproliferative neoplasms (MPN) and meet at least one of the following criteria:; Be currently receiving treatment which started within the past 18 months OR; Be planning to start treatment within one month OR; Have received Bone Marrow Transplant or CAR-T cell therapy within the past 100 days; Not be currently participating in any LLS programs or services; Be willing to be followed for 6 months; Speak English or Spanish.
Exclusion: Do not meet at least one of the following criteria if treated or planning to get treated for leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDS), or myeloproliferative neoplasms (MPN):; Be currently receiving treatment which started within the past 18 months OR; Be planning to start treatment within one month OR; Have received Bone Marrow Transplant or CAR-T cell therapy within the past 100 days; Are not diagnosed with, or have a recurrence of leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDS), or myeloproliferative neoplasms (MPN); Are currently participating in any LLS programs or services; Are not willing to be followed for 6 months; Do not speak English or Spanish.