Following Patients with Advanced Kidney Disease Starting Home or Hospital Dialysis
Follows adults with advanced kidney disease as they start home or hospital dialysis.
Plain-language title generated from the registry record
Registry title: Transitioning to Home or In-center Dialysis
Key facts
- Where
- Montreal, CanadaSee the site
Where in Canada
- Hôpital Maisonneuve-RosemontMontreal, CanadaTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Ciusss de L'Est de l'Île de Montréal
- Trial code
- NCT05989659
- Record updated
- 14 February 2025
- Original description
For people with advanced kidney disease, deciding which type of dialysis is best can be challenging. Studies have shown that quality of life is very important to patients. It is thought that the quality of life of people receiving their dialysis at home may be better than the one of people receiving dialysis in a hospital. However, how the start of dialysis changes the quality of life of people who choose home dialysis in comparison to people choosing dialysis in a hospital is still unknown.Read full original descriptionShow less
Transitioning Patients with Advanced Chronic Kidney Disease to Home or In-center Dialysis: Understanding the Experience and Quality of Life for Patients and Their Caregivers
For people with advanced kidney disease, deciding which type of dialysis is best can be challenging. Studies have shown that quality of life is very important to patients. It is thought that the quality of life of people receiving their dialysis at home may be better than the one of people receiving dialysis in a hospital. However, how the start of dialysis changes the quality of life of people who choose home dialysis in comparison to people choosing dialysis in a hospital is still unknown.
TRANSIT-CARE is a prospective mixed methods study following adult with advanced kidney disease who progress to dialysis and receive home or hospital-based dialysis. This study aims to examine the trajectory and change in patients' quality of life and their frailty status (health, mobility and function) before start of dialysis and up to 12-month after start. Differences between people doing home dialysis and hospital-based dialysis will be assesses taking into account people's characteristics including their gender and socio-demographics characteristics. The study will include questionnaires to measure quality of life and tools to evaluate frailty. Additionally, semi-structured interviews will be done with a diverse group of patients and caregivers before and after the initiation of dialysis to better understand their experience of transitioning to dialysis.
Inclusion: Adults followed in advanced CKD clinic,; estimated glomerular filtration rate (eGFR) <12 mL/min/1.73m2 103,; Have chosen their dialysis modality,; Understand English or French.
Exclusion: Planned kidney transplantation < 6 months,; Previous treatment with dialysis > 3 months,; Unable to provide consent due to severe cognitive or psychiatric disease,; Orientation toward conservative treatment,; Life expectancy < 6 months.