Why people with hidradenitis suppurativa join, leave or return to research studies
Explores what shapes decisions to join hidradenitis suppurativa studies, in adults with the condition.
Key facts
- Who runs it
- Power Life Sciences Inc.
- Where
- San Francisco, United StatesSee the site
- Trial code
- Registry title
- A Journey Into Participation Patterns Among Patients With Hidradenitis Suppurativa
- Status
- Not yet recruiting
- People taking part
- 500 people, planned
- Started
- Jan 2025
- Expected to end
- Jan 2027
- Type of study
- Observational
- Record updated
- 12 February 2024
Who can take part
AI summary
From the trial's eligibility criteria. Machine-read from the registry text on this page, so it can be wrong. The registry text below and the trial team decide who can take part.
The trial is looking for adults with hidradenitis suppurativa. It studies why people join, leave or come back to clinical trials for this skin disease.
- Age
- 18 years or older
- Sex
- All sexes
- Disease stage
- A diagnosis of hidradenitis suppurativa
Main reasons for not taking part
- Women who are pregnant or breastfeeding
- Not able to report regularly using electronic tools
- Known mental health or substance use problems that would get in the way of following the trial rules
- Not able to understand the study and give informed consent
The registry criteria, word for word
Show all 6 criteriaShow less
Who can take part
- Aged ≥ 18 years old
- Diagnosis of hidradenitis suppurativa
- Able to comprehend the investigational nature of the protocol and provide informed consent
Who cannot take part
- Has known psychiatric or substance abuse disorders that would interfere with cooperation with the requirements of the trial
- Female patients who are currently pregnant or nursing
- Inability to perform regular electronic reporting
Where in United States
- Power Life SciencesSan Francisco, United StatesContact: Michael B GillNot yet recruiting
About the trial
What the trial wants to find out
This study aims to uncover the factors driving patient decisions regarding enrollment, withdrawal, or re-engagement in hidradenitis suppurativa clinical trials. Understanding these factors will significantly improve the relevance and effectiveness of future research endeavors.
Read full original descriptionShow less
Ultimately, this trial endeavors to deepen our understanding of the factors impacting hidradenitis suppurativa clinical trial participation. Enhancing participation rates could accelerate the development of innovative treatments for this debilitating condition.
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Contact the study team: see the registry record → Contacts and Locations
Print a page for my doctorData and sources
- Registry record
- Listed on ClinicalTrials.gov.
- Official title
- Examining Engagement Trends Among Participants in Hidradenitis Suppurativa Clinical Trials
- Plain-language title
- Why people with hidradenitis suppurativa join, leave or return to research studiesGenerated from the registry record. The registry title is the official one.
- AI summary
- From the trial's eligibility criteria. Read by machine on 14 November 2026.
- Record updated
- 12 February 2024