Improving Social Relationships for Adolescents With Central Disorders of Hypersomnolence
Key facts
- Who runs it
- Boston Children's Hospital
- Where
- Boston, United StatesSee the site
- Trial code
- Status
- Completed
- People taking part
- 25 people enrolled
- Started
- 1 Apr 2024
- Ended
- 10 May 2025
- Type of study
- Interventional
- Treatments tested
- Web-based psychoeducational resource
- Record updated
- 18 March 2026
Who can take part
- Age
- 10 years to 17 years
- Sex
- Women and men
- Healthy volunteers
- Cannot take part
The registry criteria, word for word
Show all 4 criteriaShow less
Who can take part
- Adolescent from 10-17 years of age and parent of the adolescent
- Adolescent has physician-diagnosed narcolepsy type 1 or type 2, or idiopathic hypersomnia
- English fluency
- Interest in learning more about how to improve social health for adolescents with a CDH
Where in United States
- Boston Children's HospitalBoston, United StatesNo longer taking part
About the trial
What the trial wants to find out
The goal of this study is to test a web-based psychoeducational resource for adolescents with central disorders of hypersomnolence and their families. The investigators hope to assess the website's usability, acceptability, and feasibility, as well as its potential effect on social relationship health.
Read full original descriptionShow less
Participants will be asked to review the content of the psychoeducational websites. The participants will then provide feedback on the website, as well as the adolescent's social relationships and social health before and after reviewing the website through online surveys.
The group in the trial
- Web-based psychoeducational ResourceTreatment being tested
Eligible families will be provided with website access instructions. Parents and children will be instructed to review the materials separately. The intervention will provide each person with individualized action items to be discussed as a family. It is anticipated that reviewing all of the psychoeducational materials will take the parent/child approximately one hour, resulting in a total intervention burden of two hours for the family. Participants will be encouraged to return to the website as often as needed to review content. For the purposes of this project, they will be instructed to review all intervention materials within one month of receiving the website access instructions.
Data and sources
- Registry record
- Listed on ClinicalTrials.gov.
- Record updated
- 18 March 2026