Registry following adults with hypertrophic cardiomyopathy across Austrian clinics
Collects health records from people with hypertrophic cardiomyopathy, a heart thickening condition, at Austrian clinics.
Plain-language title generated from the registry record
Registry title: Austrian Hypertrophic Cardiomyopathy Registry
Key facts
- Where
- Braunau am Inn, Graz, Innsbruck, Linz, Salzburg, Sankt Johann in Tirol, Sankt Pölten, Schwarzach im Pongau, Vienna, Wels-Grieskirchen, and Wiener Neustadt, AustriaSee the 15 sites
Where in Austria
- Hospital St. Josef BraunauBraunau am Inn, AustriaTaking people
- Hospital Graz 2 WestGraz, AustriaTaking people
- Medical University of GrazGraz, AustriaTaking people
- Medical University of InnsbruckInnsbruck, AustriaTaking people
- Kepler University Hospital LinzLinz, AustriaTaking people
- Ordensklinikum LinzLinz, AustriaTaking people
- Paracelsus Medical University of SalzburgSalzburg, AustriaTaking people
- General Hospital St. Johann in TirolSankt Johann in Tirol, AustriaTaking people
- University Hospital St. PöltenSankt Pölten, AustriaTaking people
- Clinic Cardinal SchwarzenbergSchwarzach im Pongau, AustriaTaking people
- Klinik OttakringVienna, AustriaTaking people
- Medical University of ViennaVienna, AustriaTaking people
- Favoriten Clinic ViennaVienna, AustriaNo longer taking part
- Clinic Wels-GrieskirchenWels-Grieskirchen, AustriaTaking people
- Hospital Landesklinikum Wiener NeustadtWiener Neustadt, AustriaTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Medical University of Graz
- Trial code
- NCT06368518
- Record updated
- 5 December 2025
- Original description
The Austrian Hypertrophic Cardiomyopathy (HCM) Registry is a prospective, multicenter registry enrolling patients at multiple outpatient clinics across Austria including academic and non-academic centers. Patients will undergo a structured examination process including assessment for symptoms of HCM, past medical history, concomitant medication, family history and the presence of HCM-specific red flags. Furthermore, clinical data derived from electrocardiogram, echocardiography, laboratory analysis, and genetic testing will be collected focusing on a lean variable dictionary and, in addition, specific hypothesis-driven research parameters. All data are entered into an electronic case report form (eCRF) (Phoenix Clinical Trial Management System). In order to perform multicenter analyses, data can be extracted from the eCRF after approval by the steering committee.Read full original descriptionShow less
Austrian Hypertrophic Cardiomyopathy Registry
The Austrian Hypertrophic Cardiomyopathy (HCM) Registry is a prospective, multicenter registry enrolling patients at multiple outpatient clinics across Austria including academic and non-academic centers. Patients will undergo a structured examination process including assessment for symptoms of HCM, past medical history, concomitant medication, family history and the presence of HCM-specific red flags. Furthermore, clinical data derived from electrocardiogram, echocardiography, laboratory analysis, and genetic testing will be collected focusing on a lean variable dictionary and, in addition, specific hypothesis-driven research parameters. All data are entered into an electronic case report form (eCRF) (Phoenix Clinical Trial Management System). In order to perform multicenter analyses, data can be extracted from the eCRF after approval by the steering committee.
Inclusion: Patients admitted to the HCM outpatient clinic of participating centers of the HCM Registry; Interventricular septal thickness ≥ 13 mm and cardiomyopathy-specific red flags OR Interventricular septal thickness ≥ 15 mm not explainable by loading conditions OR Interventricular septal thickness ≥ 17 mm; Willingness and ability to provide signed informed consent form (ICF) prior to participation in any study-related procedures.
Exclusion: Known cardiac amyloidosis; Age < 18 years.