Navigating Pregnancy and Parenthood With Lyme Disease
Key facts
- Where
- Washington D.C., United StatesSee the site
Where in United States
- Children's National HospitalWashington D.C., United StatesContact: Meagan Williams, MSPH, CCRCTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Contact the study team: see the registry record → Contacts and Locations
Print a page for my doctorTrial details
- Who runs it
- Children's National Research Institute
- Trial code
- NCT06397794
- Record updated
- 17 June 2026
- Original description
This is a mixed methods study exploring the experiences of pregnancy and parenting among participants with Lyme disease. Eligible participants will have been diagnosed with Lyme disease (LD), post-treatment Lyme disease syndrome (PTLDS), and/or chronic Lyme (CL) either during or before a prior pregnancy. Participants will complete quantitative surveys on topics such as their medical history, their child(ren)'s development, and demographic information. They will then participate in a qualitative interview where they will be asked about their experiences with pregnancy and with parenting their child(ren) in the context of their condition.Read full original descriptionShow less
Mixed Methods Study on Navigating Pregnancy and Parenthood With Lyme Disease
This is a mixed methods study exploring the experiences of pregnancy and parenting among participants with Lyme disease. Eligible participants will have been diagnosed with Lyme disease (LD), post-treatment Lyme disease syndrome (PTLDS), and/or chronic Lyme (CL) either during or before a prior pregnancy. Participants will complete quantitative surveys on topics such as their medical history, their child(ren)'s development, and demographic information. They will then participate in a qualitative interview where they will be asked about their experiences with pregnancy and with parenting their child(ren) in the context of their condition.
Inclusion: Over 18 years of age and reside in the United States or Canada; Diagnosed with acute Lyme disease, PTLDS, and/or Chronic Lyme by a health care provider while they were pregnant OR PTLDS/CL prior to becoming pregnant with ongoing symptoms during pregnancy.
Exclusion: Previously participated in a qualitative study about their experience with Lyme disease; Never been diagnosed with Lyme disease by a medical provider; Under 18 years of age; Live outside of the United States or Canada; Never been pregnant; Never given birth to a liveborn infant; Do not want to agree to having their interviews audio recorded.