Registry collecting data on children and teens with inflammatory bowel disease
Collects clinical data from young patients with inflammatory bowel disease over follow-up.
Key facts
- Who runs it
- University of Giessen
- Where
- Giessen, GermanySee the site
- Trial code
- Registry title
- CEDATA GPGE - a Patient Registry for Children and Adolescents With Inflammatory Bowel Disease
- Status
- Recruiting
- People taking part
- 6,300 people, planned
- Started
- 1 Sept 2004
- Expected to end
- 1 Dec 2034
- Type of study
- Observational
- Treatments tested
- Patient Registry without intervention
- Digital Registry and Feedback on clinical data
- Record updated
- 23 September 2024
Who can take part
AI summary
From the trial's eligibility criteria. Machine-read from the registry text on this page, so it can be wrong. The registry text below and the trial team decide who can take part.
The registry is looking for children and adolescents with inflammatory bowel disease (IBD). It collects their clinical data without any treatment being given.
- Age
- Up to 18 years.
- Sex
- All sexes can join.
- Disease stage
- Inflammatory bowel disease (IBD). No stage or severity is given.
The registry criteria, word for word
Show all 2 criteriaShow less
Who can take part
- Inflammatory Bowel Disease
Who cannot take part
- none
Where in Germany
- University GiessenGiessen, GermanyContact: Jan de Laffolie, MDTaking people
About the trial
What the trial wants to find out
CEDATA GPGE collects clinical data of children and adolescents with IBD from paediatric gastroenterology centers in german-speaking countries.
Read full original descriptionShow less
Data is obtained from participating centers in pseudonymized way via an online platform at the beginning and during followup of the disease. The leading working group of the paediatric gastroenterology society GPGE e.V. includes 15 experts in the field who meet twice yearly and coordinate research and quality improvement initiatives.
Treatments tested
- Patient Registry without intervention
- Digital Registry and Feedback on clinical data
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Contact the study team: see the registry record → Contacts and Locations
Print a page for my doctorData and sources
- Registry record
- Listed on ClinicalTrials.gov.
- Official title
- CEDATA GPGE Patient Registry for Children and Adolescents With IBD
- Plain-language title
- Registry collecting data on children and teens with inflammatory bowel diseaseGenerated from the registry record. The registry title is the official one.
- AI summary
- From the trial's eligibility criteria. Read by machine on 12 November 2026.
- Record updated
- 23 September 2024