Looks at care and outcomes for children with electrical status epilepticus in sleep
Reviews diagnosis, treatment and long-term outcomes in children with this sleep-related seizure condition.
Plain-language title generated from the registry record
Registry title: Study of Patients with Electrical Status Epilepticus in Sleep
Key facts
- Where
- Colchester, United KingdomSee the site
Could this be for you?
Answer for yourself. This is not a decision: only the study team can say whether you can take part.
- Are you between 1 and 16 years old?
Source: NCT06792396, who can take part
Where in United Kingdom
- East Suffolk and North Essex NHS Foundation TrustColchester, United KingdomTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- East Suffolk and North Essex NHS Foundation Trust
- Trial code
- NCT06792396
- Record updated
- 24 January 2025
- Original description
Our aims are:Read full original descriptionShow less
Study to Understand the Diagnostic Measures, Management Options and Long Term Outcomes in a Local Cohort of Patients with Electrical Status Epilepticus in Sleep, Also Known As a Developmental And/or Epileptic Encephalopathy with Spike-Wave Activation in Sleep
Our aims are:
1. To understand the diagnostic practices, treatment and long term management and outcomes for patients diagnosed with ESES locally. 2. To establish a regional and national guideline for the diagnosis and management of patients with ESES.
The secondary questions that can be addressed with this case series review include the variability of clinical care given to patients with this condition, and for example, the duration of time it takes to obtain diagnostic tests and assessments by psychologists.
Inclusion: Any Paediatric patient (up to 16 years old) who has been managed for electrical status epilepticus in sleep or developmental and/or epileptic encephalopathy with spike-wave activation in sleep, by clinicians at East Suffolk and North Essex NHS Foundation Trust, within the last 15 years; Patients meeting criteria 1) with available electronic health records.
Exclusion: Any Paediatric patient (up to 16 years old) with epilepsy managed by clinicians at East Suffolk and North Essex NHS Foundation Trust, where the diagnosis of electrical status epilepticus in sleep or developmental and/or epileptic encephalopathy with spike-wave activation in sleep was not confirmed; Patients over 16 years old; Patients without electronic health record availability; Patients who have opted out of data use as per national opt out policy.