Studies biology and symptoms of ALS to aid new drug research
Collects data from adults with ALS and healthy volunteers to study the disease.
Plain-language title generated from the registry record
Registry title: ALS Research Collaborative
Key facts
- Where
- Watertown, United StatesSee the site
Where in United States
- ALS Therapy Development InstituteWatertown, United StatesTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- ALS Therapy Development Institute
- Trial code
- NCT06885918
- Record updated
- 20 March 2025
- Original description
The goal of this natural history study is to learn more about the biological and clinical aspects of amyotrophic lateral sclerosis (ALS). This study's findings will help with drug discovery, biomarker discovery, and outcome measure validation. Adults living with ALS, other motor neuron diseases (MND), a known mutation related to ALS and healthy volunteers contribute prospective and retrospective data to this study remotely. The study is sponsored and conducted by the ALS Therapy Development Institute.Read full original descriptionShow less
ALS Translational Research Program
The goal of this natural history study is to learn more about the biological and clinical aspects of amyotrophic lateral sclerosis (ALS). This study's findings will help with drug discovery, biomarker discovery, and outcome measure validation. Adults living with ALS, other motor neuron diseases (MND), a known mutation related to ALS and healthy volunteers contribute prospective and retrospective data to this study remotely. The study is sponsored and conducted by the ALS Therapy Development Institute.
Inclusion: 18 years of age or older; Can communicate in written English; Has a diagnosis of ALS/MND or is a known carrier of an ALS associated mutation.
Exclusion: Significant cognitive impairment that would prevent individual completion and understanding of the informed consent process.