Registry following adults with myelodysplastic syndromes and therapy-related leukemia
Collects long-term data from adults with myelodysplastic syndromes or therapy-related leukemia.
Plain-language title generated from the registry record
Registry title: Registry of Myelodysplastic Syndromes and Therapy-related Acute Myeloid Leukemia
Key facts
- Where
- Rouen, FranceSee the site
Where in France
- Aspasia StamatoullasRouen, FranceTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Groupe Francophone des Myelodysplasies
- Trial code
- NCT06956755
- Record updated
- 11 September 2026
- Original description
The Registry MDS is an ongoing, observational study that has collected longitudinal data on diagnostics, demographics, clinical parameters, and health Care Interventions (HCI) from patients with MDS and therapy-related acute myeloid leukemiaRead full original descriptionShow less
Registry of Myelodysplastic Syndromes and Therapy-related Acute Myeloid Leukemia
The Registry MDS is an ongoing, observational study that has collected longitudinal data on diagnostics, demographics, clinical parameters, and health Care Interventions (HCI) from patients with MDS and therapy-related acute myeloid leukemia
Inclusion: Male or female; Age > 18 years; Patients with myelodysplastic syndrome and therapy-related acute myeloid leukemia; Able and willing to provide written informed consent.
Exclusion: Age <18 years; Patient is unwilling or unable to give consent.