Coping program for people with ALS and their care partners
Tests a coping and resiliency program for adults recently diagnosed with ALS and their caregivers.
Plain-language title generated from the registry record
Registry title: Resiliency Intervention for Patients With ALS and Their Care-Partners
Key facts
- Where
- Boston, United StatesSee the site
Where in United States
- Massachusetts General HospitalBoston, United StatesNo longer taking part
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Massachusetts General Hospital
- Trial code
- NCT06968468
- Record updated
- 17 November 2025
- Original description
The purpose of this study is to pilot a resiliency and coping intervention for persons recently diagnosed with Amyotrophic Lateral Sclerosis (ALS) and their primary informal caregivers. The data investigators gather in this study will be used to further refine our intervention.Read full original descriptionShow less
Resilient Together-ALS (RT-ALS): A Dyadic Mind-body Meaning Intervention for People With ALS and Their Informal Care-partners
The purpose of this study is to pilot a resiliency and coping intervention for persons recently diagnosed with Amyotrophic Lateral Sclerosis (ALS) and their primary informal caregivers. The data investigators gather in this study will be used to further refine our intervention.
Inclusion: recent (within ~2 months) of first appointment at Healey Center for diagnosis of ALS documented in Epic (based on recommendations from neurologists); ability to understand the study and research protocol as determined by a standardized teach-back method of assessment; ability to communicate by writing, speaking, or assistive communication device; English speaking adults; dyad lives together; at least one partner endorses clinically significant emotional distress during screening (>7 on either subscale of the HADS).
Exclusion: patient with ALS with comorbid terminal diagnosis or severe mental health disorder that limits ability to participate (by self-report, as determined by our clinical team); cognitive disorder that limits ability to participate (per neurologist); inability or unwillingness to use live video technology (will teach any dyads who have low technology literacy how to use live video technology).