Taking people in ItalyNo phase
Observes children and teens with very rare tumors across several countries
Follows children with rare tumors such as paraganglioma, melanoma and GIST over time.
Key facts
- Who runs it
- Azienda Ospedaliera di Padova
- Where
- Padova, ItalySee the site
- Trial code
- Registry title
- An International Study on Pediatric Patients With Rare Tumors.
- Status
- Recruiting
- People taking part
- 6,250 people, planned
- Started
- 25 Jan 2025
- Expected to end
- 6 Jun 2049
- Type of study
- Observational
- Record updated
- 18 July 2025
Who can take part
AI summary
From the trial's eligibility criteria. Machine-read from the registry text on this page, so it can be wrong. The registry text below and the trial team decide who can take part.
The trial is looking for children and teenagers with a very rare tumour, either newly diagnosed or come back after treatment. It follows them over time without changing their care.
- Age
- 0 to 18 years
- Sex
- All sexes can join.
- Disease stage
- A first (primary) or returned (relapsed) very rare tumour, diagnosed or treated in a taking-part country or centre.
Main reasons for not taking part
- No written informed consent from the patient and/or the parent or legal guardian
The registry criteria, word for word
Show all 3 criteriaShow less
Who can take part
- Children and adolescents (age 0-18 years) with a primary or relapsed Very Rare Tumor diagnosed and/or treated in a participating country/center
- Written informed consent from the patient and/or the parent/legal guardian
Who cannot take part
- Absence of Written informed consent from the patient and/or the parent/legal guardian
Check if you might fit
Answer for yourself. This is not a decision: only the study team can say whether you can take part.
- Are you between 0 and 18 years old?
Where in Italy
- Pediatric Oncology Unit, University Hospital Padova [AOUP Azienda Ospedale Università Padova]Padova, ItalyContact: Gianni Bisogno, Medical DoctorTaking people
About the trial
What the trial wants to find out
The PARTNER study is an international, prospective, observational study of paediatric patients with very rare tumours.
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Contact the study team: see the registry record → Contacts and Locations
Print a page for my doctorData and sources
- Registry record
- Listed on ClinicalTrials.gov.
- Official title
- The PARTNER Study - An International Prospective Observational Study on Pediatric Patients With Very Rare Tumors.
- Plain-language title
- Observes children and teens with very rare tumors across several countriesGenerated from the registry record. The registry title is the official one.
- AI summary
- From the trial's eligibility criteria. Read by machine on 12 November 2026.
- Fit questions
- Built from NCT07072143, who can take part
- Record updated
- 18 July 2025