Tests a stress and mindfulness program for people with sickle cell disease

AI summary

From the trial's eligibility criteria. Machine-read from the registry text on this page, so it can be wrong. The registry text below and the trial team decide who can take part.

The trial is looking for adults with sickle cell disease who live within 90 minutes of Philadelphia. It tests a stress management and mindfulness program.

Age

18 years or older

Sex

All sexes can join

Disease stage

Diagnosed with sickle cell disease. No stage or severity is named.

Main reasons for not taking part

• Severe depression or suicidality
• Living more than 90 minutes from Philadelphia

The registry criteria, word for word

What the trial wants to find out

The purpose of this research is to determine whether a new stress management and mindfulness program can improve quality of life in individuals with sickle cell disease. The program is based on a number of empirically supported treatments including techniques from cognitive-behavioral therapy like overcoming motivational barriers to self-care, learning to see things as accurately as possible, practicing assertive communication, relaxation exercises like deep slow breathing, mindfulness meditation, and other stress management strategies.

The 2 groups in the trial

• Immediate TreatmentTreatment being tested

  6 week intervention focused on: How psychological stress affects health and SCD pain crises Deep diaphragmatic breathing and basic relaxation skills to lower stress and improve pain management CBT techniques to rethink situations, reduce stress, and respond less reactively Practice identifying unhelpful thoughts and replacing them with more balanced ones Self-Care \& Barriers to Change Learn ways to build more wellness activities into daily life. Navigating the ER \& Medical Encounters. Learn effective ways to communicate with doctors and nurses unfamiliar with SCD Mindfulness Meditation

  Treatment: Stress Management and Mindfulness Intervention for Patients with Sickle Cell Disease

• Waitlist ControlNo study treatment, for comparison

  Participants in the waitlist control will receive no treatment for 6 weeks. After completing the follow-up measures, they will be crossed over to active treatment.