Training health care providers to communicate better with children who have sickle cell disease
Tests a communication skills session for providers who care for children with sickle cell disease.
Key facts
- Who runs it
- Connecticut Children's Medical Center
- Where
- Hartford, United StatesSee the site
- Trial code
- Registry title
- Development of a Provider-Focused Intervention to Improve Health Outcomes in Pediatric Sickle Cell Disease
- Status
- Not yet recruiting
- People taking part
- 30 people, planned
- Starts
- 1 Sept 2027
- Expected to end
- 30 Jun 2030
- Type of study
- Interventional, 2 groupsOne group gets an existing treatment, for comparison.
- Treatments tested
- Individuation and Perspective-Taking (IPT)
- pediatric SCD pain management education session
- Record updated
- 29 April 2026
Who can take part
AI summary
From the trial's eligibility criteria. Machine-read from the registry text on this page, so it can be wrong. The registry text below and the trial team decide who can take part.
The trial is looking for licensed health care providers who care for young people with sickle cell disease at three children's hospitals. It tests a communication skills training.
- Age
- 18 Years or older
- Sex
- All sexes can join.
Main reasons for not taking part
- Providers who do not care for youth with sickle cell disease
- Medical trainees, not including fellows
- Providers not employed by Connecticut Children's, Yale New Haven Children's Hospital, or Children's Hospital of Philadelphia
- People who are not fluent in English
The registry criteria, word for word
Show all 6 criteriaShow less
Who can take part
- Licensed health care provider (HCP) who provides care to youth with SCD
- HCP employed by Connecticut Children's, Yale New Haven Children's Hospital, or Children's Hospital of Philadelphia and primary work area is Hematology/Oncology
Who cannot take part
- HCP who does not provide care to youth with SCD
- HCP is a medical trainee, not including fellows
- HCP not employed by CT Children's, Yale New Haven Children's Hospital, or Children's Hospital of Philadelphia
- Not fluent in English
Where in United States
- Connecticut Children's Medical CenterHartford, United StatesContact: Siddika Mulchan, PsyDNot yet recruiting
About the trial
What the trial wants to find out
The goal of this interventional study is to learn about the impact of an intervention for health care providers that teaches individuation and perspective-taking (IPT) skills to enhance patient-centered communication in pediatric sickle cell disease (SCD). The main question it aims to answer is:
Read full original descriptionShow less
Does an intervention that teaches individuation and perspective-taking (IPT) skills to pediatric sickle cell disease (SCD) health care providers (HCPs) enhance patient-centered communication?
Researchers will compare the IPT intervention to a control group who will receive education about SCD pain management to see if the IPT intervention improves patient-centered communication.
Participants will complete baseline surveys and then be randomly assigned into the intervention or control group. After completing their assigned session (IPT training or education), they will be asked to complete the same surveys as completed at baseline.
The 2 groups in the trial
- Individuation Perspective-Taking (IPT) InterventionTreatment being tested
Health care provider participants will attend a virtual session presenting the IPT intervention.
Treatment: Individuation and Perspective-Taking (IPT)
- Educational Control GroupExisting treatment, for comparison
Health care provider participants will attend a virtual presentation on didactic information about best practices in pediatric SCD pain management.
Treatment: pediatric SCD pain management education session
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Contact the study team: see the registry record → Contacts and Locations
Print a page for my doctorData and sources
- Registry record
- Listed on ClinicalTrials.gov.
- Official title
- Development of a Provider-Focused Intervention to Improve Health Outcomes in Pediatric Sickle Cell Disease
- Plain-language title
- Training health care providers to communicate better with children who have sickle cell diseaseGenerated from the registry record. The registry title is the official one.
- AI summary
- From the trial's eligibility criteria. Read by machine on 12 November 2026.
- Record updated
- 29 April 2026