Tests a phone-based system for newborn sickle cell screening in Uganda
Tests a phone-based system to help screen and follow up newborns for sickle cell disease.
Plain-language title generated from the registry record
Registry title: Evaluation of an Information Management and Communication System for Population-wide Point-of-Care Infant Sickle Cell Disease Screening
Key facts
- Where
- Jinja, UgandaSee the site
AI summary: who the study is looking for
From the trial's eligibility criteria. Machine-read from the registry text on this page, so it can be wrong. The registry text below and the trial team decide who can take part.
The trial is looking for healthcare providers and infants at selected hospitals in Uganda. Infants are recruited at birth or at vaccination visits for sickle cell disease screening.
- Age
- The registry lists a minimum age of 18 years. The criteria also describe infants as the target age group.
- Sex
- All sexes can join.
Main reasons for not taking part
- People who decline or are unable to give informed consent cannot join.
Read by machine on 9 November 2026.
Where in Uganda
- Nalufenya ChildrensJinja, UgandaTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Contact the study team: see the registry record → Contacts and Locations
Print a page for my doctorTrial details
- Who runs it
- Makerere University
- Trial code
- NCT07610239
- Record updated
- 27 May 2026
- Original description
A cluster randomized trial (CRT) of the novel sickle cell disease (SCD), M-health based SCD Information Management and Communication system SIMCS vs routine new born screening strategy in health care centres in Uganda to evaluate impact on access screening, coordination of care and clinical outcomesRead full original descriptionShow less
Evaluation of an Information Management and Communication System for Population-wide Point-of-Care Infant Sickle Cell Disease Screening
A cluster randomized trial (CRT) of the novel sickle cell disease (SCD), M-health based SCD Information Management and Communication system SIMCS vs routine new born screening strategy in health care centres in Uganda to evaluate impact on access screening, coordination of care and clinical outcomes
Inclusion: Providers of child health and maternity services at selected hospitals Infants born or attending child health and maternity services at selected hospitals . Infants are the targeted age-group in this study because this is the ideal age to screen for SCD and prevent complications and mortality that generally occurs early, by 5 years old. The infants will be recruited at birth or at vaccination visits.
Exclusion: Decline of inability to provide informed consent.