Virtual Reality Support Tool Tested in Adults With Sickle Cell Disease
Tests Amani, a virtual reality program, in adults living with sickle cell disease.
Plain-language title generated from the registry record
Registry title: Feasibility and Acceptability of Amani
Key facts
- Where
- Boston, United StatesSee the site
- Phase
- Phase 1/2
AI summary: who the study is looking for
From the trial's eligibility criteria. Machine-read from the registry text on this page, so it can be wrong. The registry text below and the trial team decide who can take part.
The trial is looking for adults with sickle cell disease who are followed at the Massachusetts General Hospital Sickle Cell Disease Center and speak English. It tests Amani, a virtual reality program.
- Age
- 18 years or older
- Sex
- All sexes can join.
- Disease stage
- Diagnosed with sickle cell disease. No stage or severity is stated.
Main reasons for not taking part
- Severe mental illness, such as a psychotic disorder or bipolar disorder, if the treating hematologist believes it would stop the person taking part
- Cognitive impairment, if the treating hematologist believes it would stop the person taking part
- Not able to understand and speak English
Read by machine on 13 November 2026.
Where in United States
- Massachusetts General HospitalBoston, United StatesContact: Richard Newcomb, MDNo longer taking part
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Contact the study team: see the registry record → Contacts and Locations
Print a page for my doctorTrial details
- Who runs it
- Massachusetts General Hospital
- Trial code
- NCT07648043
- Record updated
- 7 August 2026
- Original description
Adults with sickle cell disease (SCD) experience severe pain, emotional distress, and social isolation that diminish their quality of life. This project will test Amani, a novel virtual reality supportive care intervention designed to improve coping skills and strengthen peer support. If feasible and acceptable, Amani offers an accessible digital supportive care intervention to improve psychological well-being and quality of life among individuals living with SCD.Read full original descriptionShow less
Feasibilty and Acceptability of Amani, a Virtual Reality Application for Adults With Sickle Cell Disease
Adults with sickle cell disease (SCD) experience severe pain, emotional distress, and social isolation that diminish their quality of life. This project will test Amani, a novel virtual reality supportive care intervention designed to improve coping skills and strengthen peer support. If feasible and acceptable, Amani offers an accessible digital supportive care intervention to improve psychological well-being and quality of life among individuals living with SCD.
Inclusion: Adults (≥ 18 years) who are diagnosed with sickle cell disease; Primarily followed at the Massachusetts General Hospital (MGH) Sickle Cell Disease Center; Have ability to comprehend and speak English given Amani is currently only available in English.
Exclusion: Have severe psychiatric (psychotic disorder, bipolar disorder) or cognitive impairment which the treating hematologist believes would preclude ability to participate in the clinical trial.