Talking with people with ANCA-associated vasculitis and their doctors about shared treatment decisions
Explores how people with ANCA-associated vasculitis and clinicians view making treatment decisions together.
Plain-language title generated from the registry record
Registry title: Qualitative Study With Focus Groups of People Living With ANCA-associated Vasculitis (AAV) and Clinicians, to Explore Different Perspectives on Shared Decision-making in AAV.
Key facts
- Where
- Bristol, United KingdomSee the site
Where in United Kingdom
- Focus groups will be held online, no facility will be usedBristol, United KingdomNo longer taking part
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- University of the West of England
- Trial code
- NCT07859995
- Record updated
- 6 October 2026
- Original description
This research aims to underpin qualitative work with people living with a diagnosis of AAV and healthcare professionals working with people living with AAV, to explore different perspectives on Shared Decision Making (SDM) in AAV. The aim is to develop key principles to consider in the future development of shared decision-making tools and interventions for use in clinical practice.Read full original descriptionShow less
PACT-AAV Patients and Clinicians Together Shared Decision Making in ANCA Associated Vasculitis
This research aims to underpin qualitative work with people living with a diagnosis of AAV and healthcare professionals working with people living with AAV, to explore different perspectives on Shared Decision Making (SDM) in AAV. The aim is to develop key principles to consider in the future development of shared decision-making tools and interventions for use in clinical practice.
Inclusion: People who have a diagnosis of ANCA- associated vasculitides (AAVs); Aged 18 years or older; People should have capacity to give informed consent; People should have a good understanding of spoken and written English to be able to understand the participant information sheets, and consent forms; People who live within the UK or Ireland; HCPs can include doctors, specialist nurses, physiotherapists, occupational therapists, psychologists, and pharmacists; HCPs who work with patients with AAV; HCPs working in the UK or Ireland.
Exclusion: People less than 18 years of age; People who do not have ANCA-associated vasculitis; People without capacity to give informed consent; People who are not able to take part in the focus group in English; People who live outside the UK or Ireland; Members of the steering committee; Healthcare Professionals (HCPs) focus groups:; HCPs who do not work with people with AAV; HCPs who work outside of the UK or Ireland; Member of the steering committee.
People living with ANCA-associated vasculitis focus groups:.