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Sjögren-szindróma

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A long-term autoimmune condition in which the immune system attacks the glands that make tears and saliva, so the eyes and mouth become dry.1 Many people also have aching muscles and joints and extreme tiredness.2 There is no cure yet, but eye drops, mouth gels and other medicines ease the symptoms.2 Most people with it are women, and it is most common in adults over 50.1

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Where research stands todayFrissítve: 2026. nov. 11.
Trial-stage treatments you can join–open now
in Egyesült Államok
Studies published in the last 12 months6418 in people · 46 in animals · 0 in the lab
Szervezetek, amelyek segíthetnek3organisations
in Egyesült Államok
Offer tissue or dataGive a sample or your health data to research.Treatments outside Egyesült ÁllamokWhere it is offered, and who pays.“Miracle cure” fact checkerSaw a cure online? Check it before you pay.

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Treatments approved outside the EU

Medicines for Sjögren-szindróma approved in the US or Japan that are not approved in the EU.

Checked on 2026. nov. 11. in the official lists of the US (FDA), Japan (PMDA, approvals since April 2004) and the EU (EMA). 2 uncertain matches are left out.

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Your health insurer may pay part of the cost, sometimes all of it. This depends on your insurer, your plan and the country, so always ask your insurer before you go. For planned care in the EU, the EEA and Switzerland, ask about form S2.

Support organisations

Patient organisations and helplines in Egyesült Államok, for you and your family.

Sjögren-szindróma organisations in Egyesült Államok

  • Sjögren's FoundationPatient groupAll of Egyesült Államok

    Amerikai nonprofit alapítvány Sjögren-betegséggel élőknek: kutatási és kezelési hírek, rendezvények, érdekvédelem, betegforrások.

    sjogrens.org

Általános segítség – Egyesült Államok

Bármilyen betegséggel élőknek: betegjogok és jogsegély, lelki elsősegély-vonalak, hospice és palliatív ellátás, ellátás egy másik uniós országban, betegszervezetek ernyőszervezetei.

Egyesült Államok

  • 988 Suicide & Crisis LifelineHelplineAll of Egyesült Államok

    Amerikai nemzeti, éjjel-nappali, ingyenes és bizalmas lelkisegély-vonal öngyilkossági krízisben vagy lelki megrázkódtatásban: hívás vagy SMS a 988-ra, chat.

    988lifeline.org
  • MedlinePlusPatient groupAll of Egyesült Államok

    Az amerikai Nemzeti Orvosi Könyvtár (NIH) ingyenes, közérthető egészségügyi tájékoztató szolgáltatása betegségekről, gyógyszerekről, életmódról.

    medlineplus.gov

Nemzetközi

  • European Patients' Forum (EPF)Umbrella organisation

    Európai betegszervezetek és nemzeti betegszövetségek ernyőszervezete.

    eu-patient.eu
  • International Alliance of Patients' OrganizationsUmbrella organisation

    Minden betegségre kiterjedő betegszervezetek nemzetközi szövetsége, amely a betegközpontú egészségügyet támogatja.

    iapo.org.uk

Ernyőszervezetek (nemzeti szervezeteket fognak össze)

  • EULAR PARE (EULAR network of organisations of People with Arthritis/Rheumatism in Europe)Umbrella organisation

    Reumatikus és mozgásszervi betegséggel élők nemzeti betegszervezeteinek hálózata; uniós érdekképviselet, kutatási betegpartnerek képzése, Young PARE, webináriumok és a nemzeti csoportok támogatása.

    eular.org/the-eular-pare-community
  • Sjögren EuropeUmbrella organisation

    Nemzeti Sjögren-szindrómás betegegyesületek európai szövetsége; figyelemfelhívás, a betegek bevonása a kutatásba és a szakpolitikába, tájékoztatás és érdekképviselet az ellátásért.

    sjogreneurope.org

Offer tissue or data

There are three ways to help research move faster.

Give tissue or bloodA biobank stores your sample so many research teams can use it.No open programme yet
Share your health dataA patient registry collects your health data, without your name, for research.How to join
Take part as a healthy volunteerStudies also need people without the disease, for comparison. Family and friends can help.Volunteer

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About Sjögren-szindróma

What is it?

Sjögren's disease, also called Sjögren's syndrome, is a long-term autoimmune condition.1,2 The immune system attacks the glands that make fluids such as tears and saliva (spit), so they stop working properly.2 Why this happens is not clear; genes, hormones and an earlier viral or bacterial infection may play a part.2 Some people have it on its own; others also have a condition such as rheumatoid arthritis or lupus.1

Most people with it are women.1,2 It can start at any age, but it is most common in adults over 50, and it affects people of every background.1

The first signs

The signs can be mild or severe.2,1

  • dry eyes;2,1
  • a dry mouth;2,1
  • aching muscles and joints;2,1
  • extreme tiredness that does not go away.2,1

Other signs can be dry or itchy skin, a cough that does not go away, a hoarse voice, acid reflux, swollen glands in the cheeks, neck or under the jaw, and vaginal dryness.2 A very dry mouth can lead to tooth decay, gum disease and trouble swallowing.2

How doctors find out

There is no single test, and other conditions can cause the same signs, so your family doctor (GP) first checks for more common causes and may send you to a specialist.2,1 Tests can include blood tests, eye tests, and a saliva test where you spit into a pot for 5 minutes.2 An X-ray of the saliva glands can show if they are blocked, and a small piece of skin that contains saliva glands may be taken from your lip and looked at under a microscope (a lip biopsy). Sometimes you may also have an ultrasound scan.2

Jelenlegi kezelés

Eye drops, saliva aids and medicines for symptomsForrás: MedlinePlus

Will it get worse?

It affects people differently, and the symptoms can flare up and then settle.2 Doing too much and not resting enough may set off a flare-up.2 If your symptoms are severe, they can affect your daily life. For example, a dry mouth can make eating difficult, and dry eyes may cause vision problems. You may also have muscle and joint pain and feel tired all the time.2 Most people live into old age, with a normal life expectancy.2 The risk of a cancer of the lymph glands (non-Hodgkin lymphoma) is higher, but it is still rare.2,1

Medicines: what helps, and what to watch for

Treatment depends on your symptoms.2,1 Your doctor may prescribe medicines that keep the eyes and mouth moist or help the glands make more tears and saliva, medicines for muscle and joint pain, and, for severe disease, medicines that calm the immune attack on the glands.2,1 For severe joint pain, a short course of steroid tablets may be used.2 Small plugs in the tear ducts can keep tears in the eyes.1

Good to know:

  • a pharmacist can sell you eye drops, skin cream, mouth gel and mouthwash;2
  • paracetamol can help muscle and joint pain; your doctor can prescribe something stronger if needed;2

Work, mood and support

You may be able to work and carry on with your usual activities.2 Local or online support groups and national charities can help.2

Is there a cure?

There is currently no cure for Sjögren's.2

Általános tájékoztatás a felsorolt forrásokból, nem orvosi tanács.

Gépi összefoglaló publikált kutatásokból · forrásokkal és dátumokkal · 2026-11-11

Források

  1. MedlinePlus: Sjögren's Disease
  2. NHS: Sjögren's syndrome

olvasva: 2026-11-11