International Wilson's Disease Patient Registry (iWilson Registry)

MI-összefoglaló

A vizsgálat saját részvételi feltételeiből. Gép olvasta ki az oldalon álló regiszterszövegből, ezért tévedhet. Hogy ki vehet részt, azt a lenti regiszterszöveg és a vizsgálat csapata dönti el.

The trial is looking for people diagnosed with Wilson's disease, including people without symptoms yet. It is a registry that collects data from routine clinic visits.

Életkor

12 years and older

Nem

All sexes

A betegség stádiuma

Any person diagnosed with Wilson's disease, including those without symptoms and those with other illnesses.

Korábbi kezelés

Any treatment is allowed, including prescribed, homeopathic or traditional therapies. People who have had no treatment can also join.

A részvétel fő kizáró okai

• The person or their legal guardian does not give written consent

A regiszter feltételei, szó szerint

Mit akar kideríteni a vizsgálat

Longitudinal, observational, non-interventional, standard of care Registry. Data will be collected from the routinely scheduled WD clinic visits at approximately 6-12 month intervals. At enrolment, in addition to data from the clinic visit, retrospective data will be collected from the diagnostic evaluation and any relevant past medical history and a summary of WD medication history.