Interview Study of Adult and Child Patients and Parents of Children With Swelling Due to Nephrotic Syndrome.

Ki vehet részt

• Parents/guardians must be able to read and understand English
• Parents/guardians must be caring for a child (ages 2-11.999) with a medically documented diagnosis of idiopathic (primary) Nephrotic Syndrome (NS) or primary or monogenic NS associated kidney disease. Populations with Primary NS Conditions: Focal segmental glomerulosclerosis (FSGS), Minimal Change Disease (MCD), Immunoglobulin M (IgM) Nephropathy, Membranous Nephropathy (MN), and childhood - onset nephrotic syndrome not biopsied
• The child must have a current NS-associated edema
• The child must have native kidney function
• Parents/guardians must provide informed consent
• ≥8 years of age
• Able to read and understand English
• Primary (idiopathic) kidney disease that causes NS or monogenic NS associated kidney disease; Populations with Primary Nephrotic Syndrome (NS) Conditions include: FSGS, MCD, IgM nephropathy, MN, and childhood - onset nephrotic syndrome not biopsied
• Current NS-associated edema
• Kidney function with most recent estimated Glomerular Filtration Rate (eGFR) > 25 ml/min/1.73m2
• Informed Consent: For patients ≥8 to <18 years of age: a parent or legal guardian provide informed consent and the patient must provide assent. Patients ≥18 years of age must provide informed consent

Ki nem vehet részt

• Native kidney disease participant with dialysis dependence during the 3-month pre-enrollment period
• Co-existing significant chronic or severe acute health condition that has the potential to influence how the participant feels or functions as related to fluid overload in NS
• Index case with dialysis dependence throughout the 3-month pre-enrollment period; Criteria for the Patient Reported Outcomes (PRO) cohort of the study:

Egyéb feltételek

• Criteria for the Observer Reported Outcomes (ObsRO) cohort of the study: