Downstream Effects of Personalized 'Top-down' Participation-based Interventions Among Youth With Physical Disabilities

MI-összefoglaló

A vizsgálat saját részvételi feltételeiből. Gép olvasta ki az oldalon álló regiszterszövegből, ezért tévedhet. Hogy ki vehet részt, azt a lenti regiszterszöveg és a vizsgálat csapata dönti el.

The trial is looking for young people aged 12 to 18 with a physical disability and limited mobility, living in Quebec or Ontario. They will take part in an 8-week community activity they choose.

Életkor

12 Years to 18 Years

Nem

All

A betegség stádiuma

A physical disability (for example cerebral palsy, spina bifida, spinal cord injury, non-progressive musculoskeletal disorders, juvenile arthritis) with limited mobility. This means not being able to move safely on all surfaces and stairs without aids or help. Youth with thinking, communication or intellectual delays can join.

Korábbi kezelés

Cannot join if they had an orthopedic surgery or botulinum toxin treatment in the 6 months before, or one is planned during the study.

A részvétel fő kizáró okai

• Recovering within the first year after a severe brain injury
• Orthopedic surgery or botulinum toxin treatment 6 months before or planned during the study
• Degenerative disorders (conditions that get worse over time)
• Severe untreated mental health condition, based on the Kessler Psychological Distress Scale (K6)

A regiszter feltételei, szó szerint

Nézd meg, megfelelhetsz-e

Magadról válaszolj. Ez nem döntés: hogy részt vehetsz-e, azt csak a vizsgálat csapata mondhatja meg.

• 12 és 18 év között vagy?IgenNem

Mit akar kideríteni a vizsgálat

Participation in community-based activities is essential to the health and well-being of youth with physical disabilities; yet, it is extremely restricted. Emerging treatment approaches aimed at improving participation have shifted from focusing only on impaired body functions towards the performance of functional meaningful activities within the youth's natural environment. Investigators' initial results from studies in Quebec show that targeting intervention at the activity/participation level can result in improvement of impaired body functions (e.g., balance, attention, anxiety) - important components to address in rehabilitation. Investigators' team aims to continue studying the impact of participation by launching a larger more rigorous study. Investigators have partnered with major organizations providing rehabilitation services for youth as well as key community-based stakeholders including youth, clinicians, and managers, and together investigators plan to further examine whether engaging in an 8-week community-based activity individually chosen by the youth (e.g., sledge hockey, drawing, playing a musical instrument) can lead to a significant improvement in three key body functions: motor, behavioral and emotional. One hundred and fifty youth with physical disabilities living in Quebec and Ontario will participate and engage in an activity of choice. Changes in their body functions (e.g., movement, attention, mood) will be measured multiple times before, during and after engagement in the chosen activity. Findings of this study can guide clinicians, families and policy-makers to select effective approaches that not only promote participation but also facilitate additional motor and mental benefits from a single intervention. Such 'real-world' treatment approaches involving activities of choice can also increase motivation, compliance and reduce burden on the healthcare system and on the youth and families.

A vizsgálat csoportja

• Community-based activity programA vizsgált kezelés

  Engagement in 8-week community-based activity program.

  Kezelés: Engagement in a 8-week community-based activity program