Vitiligo Registry for Adults and Children in the UK
Ennek a vizsgálatnak nincs helyszíne itt: Egyesült Államok.
Egy országban van helyszíne. Válassz országot, hogy lásd a helyszíneket.
Kérdések a vizsgálat csapatának
- Milyen gyakran kell bejárnom, és egy-egy alkalom mennyi ideig tart?
- Megtérítik az utazási költséget?
- Megtarthatom a saját orvosomat?
- Mi történik, ha ki akarok lépni?
Contact the study team: see the registry record → Contacts and Locations
Oldal nyomtatása az orvosomnakA vizsgálat adatai
- Ki végzi
- The Royal Wolverhampton Hospitals NHS Trust
- Azonosító
- NCT06218082
- A regiszteradat frissítve
- 2026. szeptember 15.
- Eredeti leírás
Vitiligo is the most common depigmentation disorder affecting around 1% of the population worldwide. Fifty two percent of patients develop vitiligo before the age of 20 and around 80% develop vitiligo before the age of 30 years old.1 Vitiligo often presents in childhood and tends to be a lifelong disease, requiring prolonged courses of phototherapy.A teljes eredeti leírásKevesebb
Vitiligo Registry for Adults and Children in the UK (VIRTUAL-UK)
Vitiligo is the most common depigmentation disorder affecting around 1% of the population worldwide. Fifty two percent of patients develop vitiligo before the age of 20 and around 80% develop vitiligo before the age of 30 years old.1 Vitiligo often presents in childhood and tends to be a lifelong disease, requiring prolonged courses of phototherapy.
Currently no national or international registry for patients with vitiligo exists. Individual dermatologists maintain a database of such patients, however no coordinated efforts have been made to combine these individual registries into a broader national registry. Finally, recently published British Association of Dermatologists (BAD) guideline for the management of vitiligo, recommended the development of a national registry for people with vitiligo undergoing systemic or light therapy to identify outcomes and safety.
Bevonási feltételek: Paediatric and adult patients with vitiligo under management in secondary care; Written informed consent for study participation obtained from the patient or parents / legal guardian, with assent as appropriate by the patient, depending on the level of understanding; Participants consent to participate in long-term follow up and access to all relevant medical records as needed by the study team; Clinical diagnosis of vitiligo made by a dermatologist; Willingness to comply with all study requirements; Competent use of English language, according to patient's age (capable of understanding patient questionnaires).
Kizáró feltételek: Insufficient understanding of the study by the patient and/or parent/guardian; Patients with vitiligo/their parents or guardians, who do not provide consent for participation.