Virtual Hand-Arm Assessments for Children With Cerebral Palsy

MI-összefoglaló

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The trial is looking for children and teens with cerebral palsy who have some hand and arm limits. They will do hand-arm tests both by video call and in person.

Életkor

6 to 17 years

Nem

All sexes

A betegség stádiuma

Cerebral palsy with hand use at MACS levels I (handles objects easily) to III (handles objects with difficulty).

Korábbi kezelés

No Botulinum Toxin injections or constraint therapy in the last two months. No upper arm or hand surgery in the last 6 months.

A részvétel fő kizáró okai

• Botulinum Toxin injections or constraint therapy in the last two months
• Surgery on the arm or hand in the last 6 months
• Eyesight problems that would make video calls hard
• Not able to sit for 30 minutes at a time without a break
• No caregiver willing to take part, or no device and internet for video calls

A regiszter feltételei, szó szerint

Nézd meg, megfelelhetsz-e

Magadról válaszolj. Ez nem döntés: hogy részt vehetsz-e, azt csak a vizsgálat csapata mondhatja meg.

• 6 és 17 év között vagy?IgenNem

Mit akar kideríteni a vizsgálat

Cerebral palsy (CP) affects approximately 1 in 500 Canadian children, and the majority experience hand and arm limitations that impact independence, participation in daily activities, and overall quality of life. Many children require ongoing clinical assessments and therapy delivered in specialized centres, creating significant burden related to travel, scheduling, and interruptions to school and work. Barriers such as geography, socioeconomic factors, and pandemic-related service disruptions have further limited equitable access to in-person care. Although virtual care has expanded rapidly and families have expressed strong interest in hybrid care models, there is currently no validated approach for conducting comprehensive virtual hand-arm assessments for children with CP. Virtual administration of standardized assessments, individualized goal-based evaluations, and naturalistic observation tools has not been systematically studied. Evidence is urgently needed to determine which assessments can be administered virtually, how acceptable and feasible they are for families, and whether virtual and in-person assessment methods produce equivalent results.

A vizsgálat csoportja

• Children with Cerebral Palsy (CP)

  children and adolescents aged 6 to 17 years with a confirmed diagnosis of cerebral palsy and functional hand-arm abilities classified within MACS Levels I-III. All participants must have the cognitive and physical capacity to participate in virtual assessments lasting up to 30 minutes at a time, access to a device and internet connection suitable for videoconferencing, and a caregiver willing to participate in study procedures and provide input on preferences and experiences. Participants complete a standardized series of virtual and in-person upper-limb assessments, wear wrist-worn inertial sensors at home for five days, and contribute caregiver- and child-reported feedback on feasibility, acceptability, and preferences.

  Kezelés: Upper-Limb Virtual and In-Person Assessment