ADONeSS - Study of Autoimmune Diseases of the Nervous System
A legfontosabb adatok
- Ki végzi
- Walton Centre NHS Foundation Trust
- Azonosító
- Állapot
- Csak meghívásos
- Résztvevők
- 750 fő, tervezett
- Kezdés
- 2015. szept. 24.
- Várható befejezés
- 2030. aug. 31.
- A vizsgálat típusa
- Megfigyeléses
- A regiszteradat frissítve
- 2026. november 12.
Ki vehet részt
- Életkor
- 16 év felett
- Nem
- Nők és férfiak
- Egészséges önkéntesek
- Nem vehetnek részt
A regiszter feltételei, szó szerint
Mind a 5 feltétel megnézéseKevesebb
Ki vehet részt
- Patients attending Walton Centre FT with ADONeS
- Capable of informed consent
- Non-written consent will be accepted from those who want to participate in the study and are able to grant informed consent yet are physically unable to give written consent due to their disability. At least one witness other than the clinician providing information for informed consent will be required to countersign the consent form to state that they have witnessed the participants' non-written consent
- Children under 16 years that have been referred to the service
Ki nem vehet részt
- Not capable of informed consent
A vizsgálatról
Mit akar kideríteni a vizsgálat
Auto-immune conditions affecting the central nervous system are complex and can be serious life-threatening disorders. Some are well described and have established pathways of diagnosis and management e.g. multiple sclerosis (MS). But most others are quite rare, with little knowledge on clinical course, effect of treatments and long-term outcomes. Current treatments are mainly based on case reviews and expert opinions that are often limited to very few cases encountered. Through the ADONeS Study data on a substantial number of patients could be collected and shared through collaborative research.
A vizsgálat csoportja
- Potential participants will be identified by clinical care team.
1. Patients attending Walton Centre FT with ADONeS. 2. Capable of informed consent 3. Non-written consent will be accepted from those who want to participate in the study and are able to grant informed consent yet are physically unable to give written consent due to their disability. At least one witness other than the clinician providing information for informed consent will be required to countersign the consent form to state that they have witnessed the participants' non-written consent.
Kérdések a vizsgálat csapatának
- Milyen gyakran kell bejárnom, és egy-egy alkalom mennyi ideig tart?
- Megtérítik az utazási költséget?
- Megtarthatom a saját orvosomat?
- Mi történik, ha ki akarok lépni?
Contact the study team: see the registry record → Contacts and Locations
Oldal nyomtatása az orvosomnakAdatok és források
- Regiszteradat
- Szerepel a ClinicalTrials.gov-on.
- A regiszteradat frissítve
- 2026. november 12.