Chinese Academy of Medical Sciences & Peking Union Medical College
Beijing, China
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Here you will find questions you can ask, help with difficult talks, organisations for carers and your relative's rights.
Questions for your relative's doctor
You do not need the right words. Ask what your relative wants to know, and let them set the pace. These pages can help.
Looking after someone is work too. These organisations help carers, and the list further down this page shows helplines by country.
A doctor can share information and a relative can act only with the patient's consent or a legal authority. It is easier to arrange this early.
Children are often treated differently from adults, in specialist centres. Here is where to start.
Parents often receive offers of paid treatment. Please go through this list before you pay for anything.
You can share or print these pages for your members. They are free and need no account.
The trial team decides who can take part; your doctor can help you ask.
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Results, new trials and publications, newest first. Every item links to its source.
Results and new studies, newest first, in plain words.
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New and changed trials of the last 30 days, without an account and without tracking.
RSS feedCalendar reminderPublication
Revista da Associacao Medica Brasileira (1992)
PubMed · PMID 42987110Publication
Journal of translational autoimmunity
PubMed · PMID 42997061Case report
WMJ : official publication of the State Medical Society of Wisconsin
PubMed · PMID 42981530Pick up to 5 questions for your situation, then print them or take them on your phone.
Choose questionsHelplines, patient groups and support services for you and your family.
Select your country to see the organisations there, starting with the ones closest to you.
Network of national patient organisations for people with rheumatic and musculoskeletal diseases (RMDs); EU-level advocacy, patient research partner training, Young PARE, webinars and support for national groups.
Visit site: EULAR PARE (EULAR network of organisations of People with Arthritis/Rheumatism in Europe)European federation of national Sjögren's patient associations; awareness, patient involvement in research and policy, information and care advocacy.
Visit site: Sjögren EuropeFor anyone who is ill, whatever the disease: patients' rights and legal aid, crisis lines, hospice and palliative care, care in another EU country, and patient organisations' umbrella bodies.
Umbrella of European patient organisations and national patient coalitions.
Visit site: European Patients' Forum (EPF)Global alliance of patient organisations of all diseases, promoting patient-centred healthcare.
Visit site: International Alliance of Patients' OrganizationsFrontlight is not affiliated with these organisations; we list them because they help.
Checked automatically every 90 days.
Groups with active Sjögren's disease work.
Beijing, China
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Paris, France
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Beijing, China
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Shanghai, China
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Beijing, China
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Taiyuan, China
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Nanjing, China
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Hangzhou, China
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Los Angeles, United States
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Chengdu, China
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Istanbul, Türkiye
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Nanjing, China
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