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Sjögren's disease

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Cure status

Closest to patients

  1. Phase 3 Study of Telitacicept in Active Primary Sjögren's DiseasePhase 3 trial: TelitaciceptEtg Zamosc Sp. z o.o. · Zamość, Poland + 110 more hospitalsPhase 3Results expected 2028
  2. Two Arm, Double-blind, Phase III Study Assessing Efficacy and Safety of Ianalumab Versus Placebo, in Participants With Sjögren's Disease With High Symptom BurdenPhase 3 trial: VAY736Ziekenhuisgroep Twente Stichting · Almelo, Netherlands + 103 more hospitalsPhase 3Results expected 2029
  3. A Long-term Extension Study of Dazodalibep in Participants With Sjögren's Syndrome (SS)Phase 3 trial: DazodalibepFundacio Hospital de l'Esperit Sant · Santa Coloma de Gramenet, Spain + 186 more hospitalsPhase 3Results expected 2029

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Who are you looking for?

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If you are looking for a relative

Here you will find questions you can ask, help with difficult talks, organisations for carers and your relative's rights.

Questions for your relative's doctor

How do I talk to them about this?

You do not need the right words. Ask what your relative wants to know, and let them set the pace. These pages can help.

Support for you as a carer

Looking after someone is work too. These organisations help carers, and the list further down this page shows helplines by country.

Organisations on this page

Power of attorney and patient rights, by country

A doctor can share information and a relative can act only with the patient's consent or a legal authority. It is easier to arrange this early.

If you are looking for your child

Children are often treated differently from adults, in specialist centres. Here is where to start.

Before you pay

Parents often receive offers of paid treatment. Please go through this list before you pay for anything.

Open the before-you-pay list

For patient organisations

You can share or print these pages for your members. They are free and need no account.

Apply for experimental treatment or a research study

The trial team decides who can take part; your doctor can help you ask.

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Latest news

Results, new trials and publications, newest first. Every item links to its source.

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New and changed trials of the last 30 days, without an account and without tracking.

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Tools for your next step

Questions for your doctor

Pick up to 5 questions for your situation, then print them or take them on your phone.

Choose questions

Used an AI to ask about this?

Five questions that help you check the answer.

See the five questions

Organisations that can help

Helplines, patient groups and support services for you and your family.

Select your country to see the organisations there, starting with the ones closest to you.

Umbrella organisations (they connect national groups)

General support

For anyone who is ill, whatever the disease: patients' rights and legal aid, crisis lines, hospice and palliative care, care in another EU country, and patient organisations' umbrella bodies.

International

Frontlight is not affiliated with these organisations; we list them because they help.

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Find fellow researchers

Groups with active Sjögren's disease work.

Chinese Academy of Medical Sciences & Peking Union Medical College

Beijing, China

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Peking Union Medical College Hospital

Beijing, China

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Shanghai Jiao Tong University

Shanghai, China

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Shanxi Medical University

Taiyuan, China

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Nanjing Drum Tower Hospital

Nanjing, China

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Zhejiang Chinese Medical University

Hangzhou, China

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University of California, Los Angeles

Los Angeles, United States

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Sichuan University

Chengdu, China

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Sağlık Bilimleri Üniversitesi

Istanbul, Türkiye

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Nanjing University

Nanjing, China

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