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Improving care for adults with inflammatory bowel disease through shared information

Builds a shared information system so patients and care teams can plan treatment together.

Plain-language title generated from the registry record
Registry title: Improving the Quality of Care for Adults With Inflammatory Bowel Disease

Key facts

Where
Atlanta, Boise, Burnt Hills, Charleston, Charlottesville, Chicago, Dallas, Denver, Evansville, Grand Rapids, Hershey, Houston, Lancaster, Lebanon, Los Angeles, Miami, Mineola, New Haven, New York, Newport Beach, Portland, Providence, Rochester, Salt Lake City, San Diego, Shreveport, Tampa, and Washington D.C., United StatesSee the 29 sites

Could this be for you?

Answer for yourself. This is not a decision: only the study team can say whether you can take part.

  • Are you between 18 and 99 years old?

Source: NCT02791854, who can take part

Where in United States

  • Atlanta Gastroenterology AssociatesAtlanta, United StatesNo longer taking part
  • Digestive Health CenterBoise, United StatesNo longer taking part
  • Saratoga Schenectady Gastroenterology AssociatesBurnt Hills, United StatesNo longer taking part
  • Medical University of South CarolinaCharleston, United StatesNo longer taking part
  • University of VirginiaCharlottesville, United StatesNo longer taking part
  • University of Chicago Medicine Inflammatory Bowel Disease CenterChicago, United StatesNo longer taking part
  • University of Texas Southwestern Medical CenterDallas, United StatesNo longer taking part
  • University of Colorado HealthDenver, United StatesNo longer taking part
  • Digestive Care CenterEvansville, United StatesNo longer taking part
  • Corewell HealthGrand Rapids, United StatesNo longer taking part
  • Penn State Hershey Inflammatory Bowel Disease CenterHershey, United StatesNo longer taking part
  • Baylor College of Medicine IBD CenterHouston, United StatesNo longer taking part
  • Regional GILancaster, United StatesNo longer taking part
  • Dartmouth-Hitchcock Inflammatory Bowel Disease CenterLebanon, United StatesNo longer taking part
  • Cedars-Sinai Inflammatory Bowel Disease CenterLos Angeles, United StatesNo longer taking part
  • Gastro Health LLCMiami, United StatesNo longer taking part
  • NYU Long Island- Inflammatory Bowel Disease CenterMineola, United StatesNo longer taking part
  • Yale School of Medicine IBD ProgramNew Haven, United StatesNo longer taking part
  • New York University Langone Medical CenterNew York, United StatesNo longer taking part
  • Weill Cornell Medical CollegeNew York, United StatesNo longer taking part
  • Hoag Digestive HealthNewport Beach, United StatesNo longer taking part
  • The Oregon Clinic - GastroenterologyPortland, United StatesNo longer taking part
  • Gastroenterology AssociatesProvidence, United StatesNo longer taking part
  • University of RochesterRochester, United StatesNo longer taking part
  • University of Utah Health CareSalt Lake City, United StatesNo longer taking part
  • UC San Diego Health Inflammatory Bowel Disease CenterSan Diego, United StatesNo longer taking part
  • GastroIntestinal Specialists, A.M.C.Shreveport, United StatesNo longer taking part
  • University of South FloridaTampa, United StatesNo longer taking part
  • MedStar Georgetown University Hospital Center for Inflammatory Bowel DiseaseWashington D.C., United StatesNo longer taking part

Questions to ask the study team

  1. How often do I need to come in, and for how long each time?
  2. Are travel costs paid?
  3. Can I keep my own doctor?
  4. What happens if I want to stop?
Print a page for my doctor

Trial details

Who runs it
Dartmouth-Hitchcock Medical Center
Trial code
NCT02791854
Record updated
21 August 2025
Original description
Innovative programs exist that suggest that care for people with chronic conditions is optimized when patients and providers have the information they need at the point of care and over time, to engage in shared planning and execution of treatment goals and care plans. This project aims to build an Inflammatory Bowel Disease Learning Health System, a shared information environment, that highlights collaboration among patients, clinicians and care team members, and researchers; for effective use of data for guiding care, value, improvement, and research.Read full original descriptionShow less

Improving the Quality of Care for Adults With Inflammatory Bowel Disease

Innovative programs exist that suggest that care for people with chronic conditions is optimized when patients and providers have the information they need at the point of care and over time, to engage in shared planning and execution of treatment goals and care plans. This project aims to build an Inflammatory Bowel Disease Learning Health System, a shared information environment, that highlights collaboration among patients, clinicians and care team members, and researchers; for effective use of data for guiding care, value, improvement, and research.

Inclusion: 18 years of age or older; Diagnosis of Crohn's disease or ulcerative colitis or IBD unclassified; Accept the terms and conditions of Informed Consent and Authorization; Affiliated with a participating IBD Qorus site.

Exclusion: Inability to provide informed consent; Study key personnel cannot enroll as a study participant.

ClinicalTrials.gov NCT02791854