Tests a video-based support program for family caregivers of people with frontotemporal degeneration
Tests a video-based program helping family caregivers of people with frontotemporal degeneration.
Plain-language title generated from the registry record
Registry title: STELLA-FTD: Examination of a Behavior Change Intervention for FTD Family Care Partners
Key facts
- Where
- Portland, United StatesSee the site
Could this be for you?
Answer for yourself. This is not a decision: only the study team can say whether you can take part.
- Are you between 18 and 100 years old?
Source: NCT06613204, who can take part
Where in United States
- Oregon Health Science UniversityPortland, United StatesTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Oregon Health and Science University
- Trial code
- NCT06613204
- Record updated
- 27 October 2025
- Original description
The purpose of this nationwide study is to test STELLA-FTD (Support via Telehealth: Living and Learning with Advancing Alzheimer's Disease)-FTD, an intervention to specifically address the needs of family Care Partners of persons with frontotemporal degeneration (FTD). STELLA-FTD is a multicomponent videoconference-based intervention designed to facilitate effective use of community and peer resources to foster effective management of behavioral and psychological symptoms of dementia. The study is recruiting families from across the United States.Read full original descriptionShow less
STELLA-FTD: Examination of a Behavior Change Intervention for FTD Family Care Partners
The purpose of this nationwide study is to test STELLA-FTD (Support via Telehealth: Living and Learning with Advancing Alzheimer's Disease)-FTD, an intervention to specifically address the needs of family Care Partners of persons with frontotemporal degeneration (FTD). STELLA-FTD is a multicomponent videoconference-based intervention designed to facilitate effective use of community and peer resources to foster effective management of behavioral and psychological symptoms of dementia. The study is recruiting families from across the United States.
Inclusion: Adult caring for family member with FTD; Provides 4 or more hours of care/week. Does not have to reside with; Identifies at least 2 moderately upsetting behaviors in the person with FTD; Speaks and understands English to be able to participate in intervention; Owns a telephone (smartphone, cell phone or landline); Has email and mailing address to receive computer, study materials and surveys; Provides informed consent to participate in the research; Lives in the US; Diagnosis of FTD; Family member of a Care Partner (this can be a relative, spouse, or close kin that is considered family); Lives in US.
Exclusion: No Frontotemporal Degeneration diagnosis; Unable to leave Care Partner during STELLA-FTD sessions; Enrolled in hospice; Unable to find activity for Care Recipient during STELLA-FTD sessions to allow Care Partner to work privately with Guide and other Care Partners; Hearing and/or vision problems severe enough to prevent participation; Refuses to be video-recorded during STELLA-FTD sessions; Unwilling or unable to adequately follow study instructions and participate in study procedures.